Access All Areas Now! PROFILE
sara Jane Gorman and my business partner Jessica Bromley, we are Learning disability awareness trainers. Me and Jessica are members of a Self - Advocacy group called Our Shout supported by Royal Mencap in Wolverhampton.We are both members of a Self - Advocacy group called Our Shout supported by Mencap, we speak up for the rights of people with disabilities. We were both born and we live in Wolverhampton West Midlands. We are experienced in the field of learning disabilities. We have create work presentations to professional locally and regionally. We will be soon managing ACCESS ALL AREAS NOW! were supported by Mencap but we are supported by Employment Pathways in Wolverhampton. we will be all working as a team to create ACCESS ALL AREAS NOW!
Me and Jessica do our best to keep learning disability awareness on the agenda.
We are based at the Science park in the City of Wolverhampton. Access All areas Now! is based at Albert road Wolverhampton.
We are experienced consultants in the field of learning disability.
We have delivered presentations to professions locally and regionally.
I have delivered learning disability awareness training at.
The school of nursing at the University of Wolverhampton.
Social work students at the University of Wolverhampton.
Health care students at the University of Wolverhampton.
Student Health staff at the University of Wolverhampton.
Student GPS at the University of Wolverhampton.
Staff and manager Paddie Quick from the Special needs library Wolverhampton at Centre library Wolverhampton.
Jessica is a keen model. Jessica has done modeling in 2 run shows in the region.
In March 2009, Jessica has traveled to Bulgaria to work with children with disabilities in an orphanage, as well as adults with disabilities in Day Centres where she worked she gave independence and gave new experiences and chances for people.
I am a keen writer,I went on a script and screen course March 2009, to better my writing but I am more of a poet and short story writer. Christmas 2009, I helped Mencap to set up a Disabled writer's group, our members are only just starting to grow. Back in June 2008, I wrote and co - produced an Employment play to raise awareness of the difficulties people with learning disabilities have accessing employment. I have been on a script and Screen course to improve my writing, which my writing has got better but I am very much a beginner in writing plays. I had been going to different colleges for many years but I had lack of support with my dyslexia for my plays to be written on time.
ACCESS ALL AREAS NOW! started about 18 mouths ago but we only got out building April 2010.
WHO ARE WE, WHAT ARE WE PLANNING TO DO?
Target groups and beneficiaries.
People with disabilities will be the main beneficiaries as employing delivering the services of ACCESS ALL AREAS NOW by building and creating the chances of work for people with disabilities.
Local businesses and organisations will give a range of practical soutions to help them to more responsive to the needs of people with learning disabilities. It will also enable employers to fulfil on the provision of health and social care for people with learning disabilities as employees and employers.
We have have recently done a three - mouth pilot with Wolverhampton City Council to give equality and diversity training to front - line health and social care staff.
We will give a two - hour session within training day that will be specific to learning disabilities. The Pilot will run from September to December 2009.
ACCESS ALL AREAS NOW! has a vision for society where all people with a disability are valued the same as people without. People with disabilities will be listened to and included into society with the help of ACCESS ALL AREAS NOW! This can only happen if people with disabilities are given the same choices and chances as all people.
We believe that our vision and mission can only be achieved if we make full use of the talents and resources people with disabilities have got. We want to diverse business, and enable and organisations to do the same. Where individual differences are recognised and valued and where discriminatory attitudes and training is challenged.
ACCESS ALL AREAS NOW! believe that all people should have the same chance in life, no matter the ability, ethnicity, gender, beliefs like all people. ACCESS ALL AREAS NOW! we will accept people who have a keen interests to help and work with people with disabilities.
We want to make sure that our services are there for all and they are used by a big range of businesses and organisations to enable them to give more inclusive service to local people in the West Midlands. We hope that in the far future we will encourage ACCESS ALL AREAS NOW! or businesses like us to be all round Britain.
WHERE WE HAVE GIVEN LEARNING DISABILITY AWARENESS TRAINING SO FAR.
The school of Nursing at the University of Wolverhampton Social work students at the University of Wolverhampton Health care professionals at New Cross Hospital Wolverhampton
Employment Pathways helped myself and Jess to set up our own business called' Access All areas Now!' we were a Social Enter prize now we are Sole Traders. Employment Pathways is a Work Scheme for people with disabilities.
The purpose of this business is for myself and Jessica will see that people with disabilities will get easy access to the right help than what we did to get by in life. We could well end up been based at Albert road Day centre in Wolverhampton. Even though we call ourselves ACCESS FOR ALL AREAS NOW! not everything will happen at once. It takes time and money to build a business. I think we will be starting off with 2 areas Travel Buddy and Link Nurses. We will be offering out training to people and places who wanted to be trained in Learning Disability Awareness. We will start off small and work our way up.
Myself and Jess have had disabilities all our lives that have affected us and slowed us down in difference ways, we have faced the bad barriers of having disabilities but through those barriers we have achieved some very good skills.Our experiences of having had disabilities have helped us to be about to set up and run our own business. Jessica and I want to work hard enough to see that people with disabilities are getting right help to what they want in their lives just like all people.
TRAINING FROM ACCESS ALL AREAS NOW!
ACCESS ALL AREAS NOW! want to employ people with disabilities as well as people without. ACCESS ALL AREAS NOW will give people with disabilities help and advice for their talents to grow.
ACCESS ALL AREAS NOW!
Students and Service providers will be learning off local Learning Disability organisations, businesses, services and companies; they will also learn off ACCESS ALL AREAS NOW! We will train in these services to help people with learning disabilities access easy services as possible.
The Learning Disability Awareness Training will run into 3 units.
Accessible information service
Audit service Learning Disability Awareness service.
LEARNING DISABILITY AWARENESS TRAINING.
STAFF WILL NEED TO LEARN ABOUT.
History of people with disabilities.
Staff will have to learn about the hard barriers people with disabilities had to face with their lives so they can learn to make things better in future.
There are still a lot of these hard barriers going on even now.
Staff will need to notice what people with disabilities are find hard, then either give or and find the right help for them.
Staff need to believe and notice when people with disabilities have talents. Staff will need to learn how to advice them where to people with disabilities can show their talents. Today we still have a long way to go until people with disabilities feel a part of society. Staff will need to team up with Jessica and I to see that things get better for people with disabilities everyday.
Staff must be more positive with people with disabilities then they will feel more positive about staff.
Not just staff but all people without disabilities should treat, accept and respect people disabilities equally to everyone else in society.
Staff must treat people with disabilities equally to everyone else.
Staff should use easy and clear pictures and words so people with disabilities under stand information. Staff should be nicer to people with disabilities and people with disabilities should be nicer to staff.
There should not be any discrimination against anyone whether they have a disability or not.
People with disabilities are not useless, with the right help people with disabilities will get by people who had a disabilities, you have to find the right help for yourself like all people with disabilities have to?
A lot of disabilities happen by accident, from birth and through no fault of peoples' own.
LEARNING DISABILITY AWARENESS TRAINING.
ACCESS ALL AREAS NOW!
Access All Areas Now! will officer bespoke training to local businesses and organisations which Learning Disability Awareness trainers will do. The course will give a positive under standing of our training, needs and aspiration of with a learning disability are trained to train services to be and give good services and the commercial and retail sector to better outcomes for people with disabilities who may be receiving services or who are potential workers. The training will search issues first hand and clearly demonstrate the talents people with disabilities have. Aim to break down the barriers of prejudice and stigma that people with disabilities have always faced.
ACCESSIBLE INFORMATION.
Our service will be there for other services if they want learning disability awareness training. We will do our best to help Service providers learning how make information for people with learning disabilities to read and in turn, other client groups. This could range from Service leaflets, help with consultation materials or policy documents.
People working in the field of learning disabilities will be trained by two people with disabilities. This service will be there for local businesses and organisations to help information become accessible with disabilities Jessica and myself who are Learning Disability Awareness trainers.
With the training of Access All Areas Now! people will be trained to make information more easy for people with disabilities to read and understand People with a disability and in turn, other client groups. This could range from service leaflets, help with consultation materials or policy documents.
INCLUSION AUDITS
These will mixture of formal and informal checks, creating independent advice on how to make a businesses and organisations more learning disability friendly. The audits will access a small set of standards across a range of criteria. For eg:
User involvement
Creating Policy Adapting resources and built environment Communication( both written and verbal)
Local organisations and businesses undertake and passing audit will receive an award acknowledging their positive approach and this will be given through the local media and networks built by ACCESS ALL AREAS NOW!
Those who don't achieve the award will be given advice how to better their training. Other well know approaches such as 'mystery shoppers' will be used to check for inclusive training and pratice whether organisations and businesses are meeting current legislation.
Saturday, 9 May 2009
Thursday, 7 May 2009
PAST PRESENT AND FUTURE
Our Drama play turned out very well on Friday 5th June 2009. We cut a few scenes out because we had only enough funding for 20 minutes.
Jessica dressed as the White lady with a white nightly, white paint on her face and make up.
Sam Hanchard played George the hotel manager, Tracey played his wife, myself Sara Gorman played the maid and Jamie Higgins was the chief. Jason played John who saw the devil and Greg Silvester played the devil on BrierleyHill. Colin Bresland, David Ball, Kelly Price, Gemma Hepwood and Tom Goode played all ghosts of Brierley Hill.
News on Mates to Dates?
Learning Disability Awareness in Socialing.
I only found out about a mouth ago that Dates to Mates sadly came to an end due to a lack of funding through today's cutbacks. I know we didn't have a great of members anyway but with a deal of slow hard work I believe we would have got there. Most people without disabilies tend to think that it's as easy for people with to get about as much as people without. These cutbacks have caused a lot of problems for eg; Mencap have another social project called Cirlce of Friends cutting back too. Where people with disabilities are going to spend their evenings I don't know. Many people need support to get out and about whether it's day or night, the money seems to be cutting back to support them. Most people become very depressed if they can't get out to meet one another or even make new dates or and mates.For your views please email sarajgorman@googlemail.com Written Monday 20th December 2010
I only found out about a mouth ago that Dates to Mates sadly came to an end due to a lack of funding through today's cutbacks. I know we didn't have a great of members anyway but with a deal of slow hard work I believe we would have got there. Most people without disabilies tend to think that it's as easy for people with to get about as much as people without. These cutbacks have caused a lot of problems for eg; Mencap have another social project called Cirlce of Friends cutting back too. Where people with disabilities are going to spend their evenings I don't know. Many people need support to get out and about whether it's day or night, the money seems to be cutting back to support them. Most people become very depressed if they can't get out to meet one another or even make new dates or and mates.For your views please email sarajgorman@googlemail.com Written Monday 20th December 2010
What we have learned about running Mates to Dates
We had our last event On Saturday 2nd May 2009. It went alright, very few people still turned up. I have heard that most people are paying but not turning up, I may have told you before in Mates to Dates reports that we do not do refunds sorry, which means we can not pay you your money back.
We are aware that help for transport still is not good enough. We are still working as hard as we can to get the Travel Buddy together. We are still waiting for a building to run our business. We think it could end up been at Albert road Wolverhampton mid to late summer. I know we promised April this year but it has taken longer than we excepted. We won't be just helping people with disabilities with traveling but other areas of our lives too. This is why we will be calling ourselves ACCESS FOR ALL AREAS NOW! Sorry to say that it could happen very slowly I guess for us to support areas at once very quickly. Running a business does not happen quickly as a lot of you may well know. It can take a lot of time and money as I have said in the ACCESS FOR ALL AREA NOW! report.
If you help people with disabilities in anyway, please help them to get out and about to enjoy themselves. Please don't be too over protected but just be there if they want you there. Please don't stop them doing what they want to do and give them their own choices in their lives with the right support.
We worry about drinking, nobody is saying that you can't drink, you are adults after all. Please be careful for not only for your safety but the safety of others. Sometimes when people drink far too much, they can say things that they don't mean. When you say how you feel about people on Mates to Dates you could say one thing on the night but not feel the same the next day. After you have had a date with each person, we will give a piece paper so you can tell us what you think about each person. On the piece of paper there are three pictures a man and woman loving one another that means dates, Two people putting hands on their shoulders that means mates and two people standing back to back meaning that they don't want to know one another. It's very important that you are truthful of how you feel about people. It's also very important that the people dating you tell the truth of how they feel about you. You will circle the picture to say how you feel about each person you have had a date with. If you have a match in a matter of days we will contract you but it could be a match as a date or a mate.
I am sorry that on my website I haven't really got the tools make it accessible but if you need any help in reading and under standing in what I am trying to say on my website, you are very welcome to email over anything at any time. Don't always except quick respond because I can be very busy! sarajgorman@googlemail.com
We are aware that help for transport still is not good enough. We are still working as hard as we can to get the Travel Buddy together. We are still waiting for a building to run our business. We think it could end up been at Albert road Wolverhampton mid to late summer. I know we promised April this year but it has taken longer than we excepted. We won't be just helping people with disabilities with traveling but other areas of our lives too. This is why we will be calling ourselves ACCESS FOR ALL AREAS NOW! Sorry to say that it could happen very slowly I guess for us to support areas at once very quickly. Running a business does not happen quickly as a lot of you may well know. It can take a lot of time and money as I have said in the ACCESS FOR ALL AREA NOW! report.
If you help people with disabilities in anyway, please help them to get out and about to enjoy themselves. Please don't be too over protected but just be there if they want you there. Please don't stop them doing what they want to do and give them their own choices in their lives with the right support.
We worry about drinking, nobody is saying that you can't drink, you are adults after all. Please be careful for not only for your safety but the safety of others. Sometimes when people drink far too much, they can say things that they don't mean. When you say how you feel about people on Mates to Dates you could say one thing on the night but not feel the same the next day. After you have had a date with each person, we will give a piece paper so you can tell us what you think about each person. On the piece of paper there are three pictures a man and woman loving one another that means dates, Two people putting hands on their shoulders that means mates and two people standing back to back meaning that they don't want to know one another. It's very important that you are truthful of how you feel about people. It's also very important that the people dating you tell the truth of how they feel about you. You will circle the picture to say how you feel about each person you have had a date with. If you have a match in a matter of days we will contract you but it could be a match as a date or a mate.
I am sorry that on my website I haven't really got the tools make it accessible but if you need any help in reading and under standing in what I am trying to say on my website, you are very welcome to email over anything at any time. Don't always except quick respond because I can be very busy! sarajgorman@googlemail.com
Sunday, 3 May 2009
I will find a way to move on.
I will never move on as long as I stay with you.
Even though our relationship may have ended in friendship not hate but carrying on seeing one another like we have been is getting us nowhere.
I know you have nowhere to move on to but that's just your own fault.
I have been there every step of the way for you for 15 yrs now, how mad am I?
You have never seem to know what you wanted, how mad have I been to wasting my time on you?
Now I don't have anymore time to waste on a man who does not love me anymore, perhaps you never did.
Nothing seems to be changing between us but yes I'm changing I'm moving on to another life but I don't know where.
I hope the next man in my life will know what he wants and love me for me.
After having seen you for 15yrs, it will be hard and strange being without you but I will get through.
What's the point staying with you as it seems things are not moving forward for any of us?
You never seem to believe in yourself, you say you always fail when it comes to relationships, Why have I wasted 15 yrs with a person who does not believe in himself?
If you carry on saying negative things about yourself, you will go down with the negative things you do say about yourself.
You thought I was going to go down with you, how wrong are you?
Even though our relationship may have ended in friendship not hate but carrying on seeing one another like we have been is getting us nowhere.
I know you have nowhere to move on to but that's just your own fault.
I have been there every step of the way for you for 15 yrs now, how mad am I?
You have never seem to know what you wanted, how mad have I been to wasting my time on you?
Now I don't have anymore time to waste on a man who does not love me anymore, perhaps you never did.
Nothing seems to be changing between us but yes I'm changing I'm moving on to another life but I don't know where.
I hope the next man in my life will know what he wants and love me for me.
After having seen you for 15yrs, it will be hard and strange being without you but I will get through.
What's the point staying with you as it seems things are not moving forward for any of us?
You never seem to believe in yourself, you say you always fail when it comes to relationships, Why have I wasted 15 yrs with a person who does not believe in himself?
If you carry on saying negative things about yourself, you will go down with the negative things you do say about yourself.
You thought I was going to go down with you, how wrong are you?
Tuesday, 28 April 2009
The princess and the witches.
Once upon a time there was a princess named Suzanne who was born to Queen Alice and King Richard. They all lived in a beautiful castle in London.
When Princess Suzanne turned sixteen, she became very beautiful princess with long curly silky blond hair. Her checks and lips were as red as strawberries.
The king and Queen's marriage ended but they still wanted there daughter to marry a handsome prince.
One day the princess put on her lovely long red dress and wore her gold crown, she told her Father that she was going out for a walk on a beautiful sunny day.
" What a wonderful idea," said King Richard
The princess walked through the fields of red roses, she walked for miles not knowing where she was going and where she was going to end up. Suddenly the princess came to a road as she crossed over, she saw a white witch waving to her through a window of a hut in a field she had blond hair and she wore a white pointed hat. The princess walked through a gate straight down a path. The hut was on the right hand side as she knocked the door.
" Come into my hut, princess I think I have some good news for you."
" Hi, I am Princess Suzanne!"
" Hi, I am White witch!"
The white witch waved her magic wand, then told the princess that she was going to meet a handsome prince and live happily ever after. This made the princess so happy, she jumped up and down with joy.
" Now princess, you now need to see the black witch, she will know more about the prince than I do."
The princess went to see the black witch, when she told the princess that she was not pretty enough for the prince. The black witch wanted the prince herself. The princess walked out of the hut in tears. As she walked out she passed the brown witch's hut so she knocked her door.
" I fancy the prince, I would not match him with you."
The princess walked out and cried yet again. Out came the black and the brown witch together setting themselves on the princess, then end up falling out over the prince themselves. Out came the the brown and black cat as they hissed at the princess and the two witches. The white witch and her cat saved the princess. The princess walked round and round the white witch's hut crying her eyes out in shock.
" I am so sorry Suzanne, I never thought they would behave like this, oh take no notice of those two nasty witches."
" They are like a pair of kids."
" I told them to stop being jealous because it doesn't get you anywhere."
" Thank you, White witch."
The Suzanne was a very quit princess. The white witch took the princess into her hut.
" It's ok here is the Black Witch's black cat, it only hissed at you because she trained it to. I train this black cat to give you good luck.
" Oh thank you, white witch."
The white witch took hold of the princess's hand, as she rubbed princess's hand all across the black cat. The white witch waved her magic wand.
" Don't be frightened princess, there's nothing to worry about."
The black cat gave a purl, she was pure black without any other colour.
Sooner the princess rubbed the black cat, the white witch said.
" Now look outside the window princess."
When princess looked outside the window, there was a tall dark haired handsome prince who came out of a black Rolls Royce car. The prince came into the hut and carried the princess outside into the Rolls Royce car. They went to live in Paris. No one knows if they lived happily ever after or not.
" Wow." said the princess
When Princess Suzanne turned sixteen, she became very beautiful princess with long curly silky blond hair. Her checks and lips were as red as strawberries.
The king and Queen's marriage ended but they still wanted there daughter to marry a handsome prince.
One day the princess put on her lovely long red dress and wore her gold crown, she told her Father that she was going out for a walk on a beautiful sunny day.
" What a wonderful idea," said King Richard
The princess walked through the fields of red roses, she walked for miles not knowing where she was going and where she was going to end up. Suddenly the princess came to a road as she crossed over, she saw a white witch waving to her through a window of a hut in a field she had blond hair and she wore a white pointed hat. The princess walked through a gate straight down a path. The hut was on the right hand side as she knocked the door.
" Come into my hut, princess I think I have some good news for you."
" Hi, I am Princess Suzanne!"
" Hi, I am White witch!"
The white witch waved her magic wand, then told the princess that she was going to meet a handsome prince and live happily ever after. This made the princess so happy, she jumped up and down with joy.
" Now princess, you now need to see the black witch, she will know more about the prince than I do."
The princess went to see the black witch, when she told the princess that she was not pretty enough for the prince. The black witch wanted the prince herself. The princess walked out of the hut in tears. As she walked out she passed the brown witch's hut so she knocked her door.
" I fancy the prince, I would not match him with you."
The princess walked out and cried yet again. Out came the black and the brown witch together setting themselves on the princess, then end up falling out over the prince themselves. Out came the the brown and black cat as they hissed at the princess and the two witches. The white witch and her cat saved the princess. The princess walked round and round the white witch's hut crying her eyes out in shock.
" I am so sorry Suzanne, I never thought they would behave like this, oh take no notice of those two nasty witches."
" They are like a pair of kids."
" I told them to stop being jealous because it doesn't get you anywhere."
" Thank you, White witch."
The Suzanne was a very quit princess. The white witch took the princess into her hut.
" It's ok here is the Black Witch's black cat, it only hissed at you because she trained it to. I train this black cat to give you good luck.
" Oh thank you, white witch."
The white witch took hold of the princess's hand, as she rubbed princess's hand all across the black cat. The white witch waved her magic wand.
" Don't be frightened princess, there's nothing to worry about."
The black cat gave a purl, she was pure black without any other colour.
Sooner the princess rubbed the black cat, the white witch said.
" Now look outside the window princess."
When princess looked outside the window, there was a tall dark haired handsome prince who came out of a black Rolls Royce car. The prince came into the hut and carried the princess outside into the Rolls Royce car. They went to live in Paris. No one knows if they lived happily ever after or not.
" Wow." said the princess
My experince with the NHS.
When I was about 2 to 3 yrs old. A doctor fell asleep when he was assessing me. He was very old, perhaps his health wasn't very good either. He should have retried at that point.
When I was 13 yrs I had a brace for 2 yrs because my teeth kept on sticking out like Bugs Bunny, I used to get picked on in school because my teeth. The NHS would not let me have a brace at first because of the tablets I was taking for my fits. The tablets were were making my gums my soft. They did trust me to keep the brace clean. They though it would be dangerous for me to have a brace because of fits.When they finely put brace on me I coped better than what they thought. They did not think a person with a disability could cope with a brace. I was also very disappointed to find out that they would not operate on my teeth because I think my teeth have come forward during my adult years. Perhaps if they would have operated on my teeth, they may not have stuck out again.
When I was 23 yrs old, I was in the eye, ear, mouth and throat hospital in Shropshire, I had cancer of the throat. It was the morning after my operation at 6.00am when I fell over a pile of bed panes in the bathroom. All I remember was unbolting the door as I passed a nurse saying to me.
" Sara, your chin is bleeding,"
" Sorry, I didn't know, nothing hurts, I just feel dizzy."
The nurse walked me up to my bed, she left with some tissues moping my chin until 12.30pm. I was so fed up moping my chin hours on end. My Mother came in at 12.00pm wondering why I was left such a long time moping my chin. My Mother went mad. It was 12.30pm when the doctors finely stitched my chin up.
I have just changed my doctors because I didn't like the prescription system. Talking the prescription to the doctors and waiting two days until the doctor will sign it. I like to get the job done in one.This system sounds better now but they are still waiting for my medication history off my last doctors.
I also didn't like the way my old doctors communicated with me, I didn't like their tones of voices and I felt that they were very rude.
Our Shout Mencap understand that people with disabilities can get forgotten about. Health staff need to be trained by people disabilities to be able to understand people with disabilities and learn how to look after them. You must use easy words, easy pictures, there should be more learning disability nurses and doctors about. The government should pay more health care. Disabled people and old people get left behind when been in hospital, there seems to be very little money to employ Health staff. The problem in this country is that the money seems to be spent on the least important things. No wonder there has been so many unnecessary deaths like the Death indifference for eg; Please go on the Mencap website, or just put Mencap in your search engine which will tell you about the six shocking deaths of young people with Learning Disabilities.
INTRODUCTION. Real lives, real bad Health care stories of people with learning disabilities.
We have had good and bad experiences, as have most people. However the bad outweighed the good. I do this work with a Self - Advocacy group called Our Shout supported by Mencap, which is a group of people with learning disabilities. In order to respect the group of people I work with, it's only fair to keep their stories private even though my story is on my website. What will say is what we have been through has neglect has caused us more harm than the illnesses we have gone to hospital for. Our stories are not only about what we have through in the hospitals but what have through in the doctors too. We are hard to see that what we have been doesn't happen to other people with learning disabilities. This is what we have experienced.
Not enough clear language.
Lack of respect.
People talking over us.
People ignoring us and talking to other people about us.
No real understanding of our needs.
VALUING PEOPLE NOW!
Making it happen for everyone. Valuing People Now! is a three year plan for people with a learning disability, families and carers by our say so.
Change needs to happen to everyone with learning disabilities.
'HEALTH CARE FOR ALL.' is a report that calls out a hard hitting valuable message. It sets out an undeniable evidence that people with learning disabilities have greater needs for Health care more so than other people, yet have worse access to care we need resulting poorer health.
SOME OF THE NEXT STEPS.
One of the key points is better health.
Making that mainstream NHS providers give full and equal access to good quality health care.
Most people with learning disabilities have poorer health than other people. A lot of us die young not so much due our disabilities, health problems and illnesses but neglect.
There's a clear evidence that our access to Health care is often poor with common experiences of neglect, lack of dignity and safety.
We believe this is because of institutional discrimination.
We are likely to die at a younger age than other people.
There's clear evidence that we have poor access to Health care, experiences of neglect, lack of dignity and safety.
We believe this is because of institutional discrimination.
Neglect and abuse of disabled people is absolutely unacceptable. The government is determined that lessons are learned and action is taken to better Health care for people with learning disabilities.
MENCAP'S DEATH INDIFFERENCE REPORT.
Mencap had heard about many stories of six people with learning disabilities who died because they didn't have the Health care they needed. In response to this, Mencap published a report called ` DEATH INDIFFERENCE.'which told some horrific true stories of the six people with learning disabilities who died in the hands of professionals.
Martain died in hospital on the 21st December 2005, he hadn't been given any food for 26 days. Martain had a severe learning disability and no speech. He was 43 years old.
Make sure you have the right attitude! in whatever job you do mainly when it comes to learning disability and health because this is about people's lives. Changing small things like making language more easy for people with learning disabilities to understand. Educate people you are working with including your managers to how important Health care is to people with learning disabilities. Lead by eg;
Make sure that you learn and understand about the Mental Capacity Act, It's law. You must apply it to your work.Remember you must assume everyone has capacity to make a decision until it can be proved otherwise.
Everyone who gives treatment should understand laws about consent. If you understand laws better, people with learning disabilities would get help that's in our best interest.
Remember people with learning disabilities need more time to fully understand something!
What might you do different need time to make sure that people with learning disabilities are treated to our needs and fully understand what's happening to us?
INSTITUTIONAL DISCRIMINATION HAPPENS WHEN SERVICES.
Do not value people equally.
Do not change the way services are delivered to meet all people's needs.
This has happened for far too long ans staff get used to working the same way and they don't notice that it's wrong.
Several reports say that this leads to abuse, undiagnosed illness, Mental health problems, Mental illnesses, Health problems, disabilities, Health conditions and unavoidable death.
Most Health care professionals tend to think people with learning disabilities don't have a good life. This means that they don't always do what they could do to save them. You should think that a person's life isn't worth saving just because they have learning disabilities.
Actively encourage and insist on training to help you understand learning disability. This could help prevent the unnecessary death of someone you are treating.
Attention should be paid to people with complex needs on admission to hospital making sure family carers are not doing the role of the Health professionals.
However it is crucial that you listen to family carers as well as people with learning disabilities. They know best but people with learning disabilities know how we feel.
Better partnership working with learning disability nurses to educate staff about learning disability issues.
The Disability Equality Duty became law in December 2006 and said companies like the NHS must take people with disabilities into account when we provide services.
consulting with Our Shout and other learning disability group leaders about planning and delivery of services as well as staff training would ensure that it's being done.
Talk to people with learning disabilities about producing information in accessible formats.
The Disability Discrimination Act say you need to be doing this by using different ways of using communication.
pictures
photos
gesture and signing
makaton
Talking mats
Software packages like photo symbols
Visual aids
use specialist speech and language Therapists
Our lives are just as important as yours!
Thank you for reading our presentations, mine and Martain's story. We hope you have a learned a lot off us. We are very sorry that it was sad but things need to get better for the health and safety of all people. If you have any questions, comments or anything, or if you want to learn more about learning disabilities you are more than welcome to email me on sarajgorman@googlemail.com. I hope there are more things on this website for you to learn from than just this presentation. once again thank you, we hope we have been a big help to you and bye.
When I was 13 yrs I had a brace for 2 yrs because my teeth kept on sticking out like Bugs Bunny, I used to get picked on in school because my teeth. The NHS would not let me have a brace at first because of the tablets I was taking for my fits. The tablets were were making my gums my soft. They did trust me to keep the brace clean. They though it would be dangerous for me to have a brace because of fits.When they finely put brace on me I coped better than what they thought. They did not think a person with a disability could cope with a brace. I was also very disappointed to find out that they would not operate on my teeth because I think my teeth have come forward during my adult years. Perhaps if they would have operated on my teeth, they may not have stuck out again.
When I was 23 yrs old, I was in the eye, ear, mouth and throat hospital in Shropshire, I had cancer of the throat. It was the morning after my operation at 6.00am when I fell over a pile of bed panes in the bathroom. All I remember was unbolting the door as I passed a nurse saying to me.
" Sara, your chin is bleeding,"
" Sorry, I didn't know, nothing hurts, I just feel dizzy."
The nurse walked me up to my bed, she left with some tissues moping my chin until 12.30pm. I was so fed up moping my chin hours on end. My Mother came in at 12.00pm wondering why I was left such a long time moping my chin. My Mother went mad. It was 12.30pm when the doctors finely stitched my chin up.
I have just changed my doctors because I didn't like the prescription system. Talking the prescription to the doctors and waiting two days until the doctor will sign it. I like to get the job done in one.This system sounds better now but they are still waiting for my medication history off my last doctors.
I also didn't like the way my old doctors communicated with me, I didn't like their tones of voices and I felt that they were very rude.
Our Shout Mencap understand that people with disabilities can get forgotten about. Health staff need to be trained by people disabilities to be able to understand people with disabilities and learn how to look after them. You must use easy words, easy pictures, there should be more learning disability nurses and doctors about. The government should pay more health care. Disabled people and old people get left behind when been in hospital, there seems to be very little money to employ Health staff. The problem in this country is that the money seems to be spent on the least important things. No wonder there has been so many unnecessary deaths like the Death indifference for eg; Please go on the Mencap website, or just put Mencap in your search engine which will tell you about the six shocking deaths of young people with Learning Disabilities.
INTRODUCTION. Real lives, real bad Health care stories of people with learning disabilities.
We have had good and bad experiences, as have most people. However the bad outweighed the good. I do this work with a Self - Advocacy group called Our Shout supported by Mencap, which is a group of people with learning disabilities. In order to respect the group of people I work with, it's only fair to keep their stories private even though my story is on my website. What will say is what we have been through has neglect has caused us more harm than the illnesses we have gone to hospital for. Our stories are not only about what we have through in the hospitals but what have through in the doctors too. We are hard to see that what we have been doesn't happen to other people with learning disabilities. This is what we have experienced.
Not enough clear language.
Lack of respect.
People talking over us.
People ignoring us and talking to other people about us.
No real understanding of our needs.
VALUING PEOPLE NOW!
Making it happen for everyone. Valuing People Now! is a three year plan for people with a learning disability, families and carers by our say so.
Change needs to happen to everyone with learning disabilities.
'HEALTH CARE FOR ALL.' is a report that calls out a hard hitting valuable message. It sets out an undeniable evidence that people with learning disabilities have greater needs for Health care more so than other people, yet have worse access to care we need resulting poorer health.
SOME OF THE NEXT STEPS.
One of the key points is better health.
Making that mainstream NHS providers give full and equal access to good quality health care.
Most people with learning disabilities have poorer health than other people. A lot of us die young not so much due our disabilities, health problems and illnesses but neglect.
There's a clear evidence that our access to Health care is often poor with common experiences of neglect, lack of dignity and safety.
We believe this is because of institutional discrimination.
We are likely to die at a younger age than other people.
There's clear evidence that we have poor access to Health care, experiences of neglect, lack of dignity and safety.
We believe this is because of institutional discrimination.
Neglect and abuse of disabled people is absolutely unacceptable. The government is determined that lessons are learned and action is taken to better Health care for people with learning disabilities.
MENCAP'S DEATH INDIFFERENCE REPORT.
Mencap had heard about many stories of six people with learning disabilities who died because they didn't have the Health care they needed. In response to this, Mencap published a report called ` DEATH INDIFFERENCE.'which told some horrific true stories of the six people with learning disabilities who died in the hands of professionals.
Martain died in hospital on the 21st December 2005, he hadn't been given any food for 26 days. Martain had a severe learning disability and no speech. He was 43 years old.
Make sure you have the right attitude! in whatever job you do mainly when it comes to learning disability and health because this is about people's lives. Changing small things like making language more easy for people with learning disabilities to understand. Educate people you are working with including your managers to how important Health care is to people with learning disabilities. Lead by eg;
Make sure that you learn and understand about the Mental Capacity Act, It's law. You must apply it to your work.Remember you must assume everyone has capacity to make a decision until it can be proved otherwise.
Everyone who gives treatment should understand laws about consent. If you understand laws better, people with learning disabilities would get help that's in our best interest.
Remember people with learning disabilities need more time to fully understand something!
What might you do different need time to make sure that people with learning disabilities are treated to our needs and fully understand what's happening to us?
INSTITUTIONAL DISCRIMINATION HAPPENS WHEN SERVICES.
Do not value people equally.
Do not change the way services are delivered to meet all people's needs.
This has happened for far too long ans staff get used to working the same way and they don't notice that it's wrong.
Several reports say that this leads to abuse, undiagnosed illness, Mental health problems, Mental illnesses, Health problems, disabilities, Health conditions and unavoidable death.
Most Health care professionals tend to think people with learning disabilities don't have a good life. This means that they don't always do what they could do to save them. You should think that a person's life isn't worth saving just because they have learning disabilities.
Actively encourage and insist on training to help you understand learning disability. This could help prevent the unnecessary death of someone you are treating.
Attention should be paid to people with complex needs on admission to hospital making sure family carers are not doing the role of the Health professionals.
However it is crucial that you listen to family carers as well as people with learning disabilities. They know best but people with learning disabilities know how we feel.
Better partnership working with learning disability nurses to educate staff about learning disability issues.
The Disability Equality Duty became law in December 2006 and said companies like the NHS must take people with disabilities into account when we provide services.
consulting with Our Shout and other learning disability group leaders about planning and delivery of services as well as staff training would ensure that it's being done.
Talk to people with learning disabilities about producing information in accessible formats.
The Disability Discrimination Act say you need to be doing this by using different ways of using communication.
pictures
photos
gesture and signing
makaton
Talking mats
Software packages like photo symbols
Visual aids
use specialist speech and language Therapists
Our lives are just as important as yours!
Thank you for reading our presentations, mine and Martain's story. We hope you have a learned a lot off us. We are very sorry that it was sad but things need to get better for the health and safety of all people. If you have any questions, comments or anything, or if you want to learn more about learning disabilities you are more than welcome to email me on sarajgorman@googlemail.com. I hope there are more things on this website for you to learn from than just this presentation. once again thank you, we hope we have been a big help to you and bye.
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