Awarness of Epliespy and mental health

I watched a documentary on a late 70s band called Joy Division who became New Order in the early to mid-80s. Ian Curtis used to be the lead singer of Joy Division who suffered major Depression and as time went on major Epilepsy.  I know it's heading towards Xmas but this documentary couldn't help but inspire me to write a short report and the awareness of Mental Health and Epilepsy.

This made me think that the illnesses and conditions Ian was facing may have bough on his suicide to end his life at such a young age of 23 back in May 1980, which were sadly there was any awareness, education, help or support back then, therefore the way things are going with the funding today for Mental health, Epilesspy, other illnesses, conditions, etc the fear is that we could be going back to how things were in the 70s, 80s and before that. We also need those of us who face these illnesses, conditions we need to raise awareness and education those people who don't mainly for those who have involved the lives who do.


Ian Curtis was a famous pop star was he must have felt he was finding hard to hold down his career, also may have felt dependant on his band members, other workers around, family and friends. In the documentary, a band member or worker said when Ian saw the doctor about his Epliespy, his doctor said to get to bed early, which wasn't an easy one when been in the pop business, someone else said if only Ian even said for him and the band to take some time off, where I think what this person felt Ian meant that stress was getting to Ian. 

How can we support people facing the same or and similar things in the future?

Funding and raising money for those in these situations to help them to have equal lives to other people as much as possible.

Educate and raise awareness of as many illnesses, conditions, disabilities, etc as possible to those in their lives.
We can never force anyone to tell us, someone, where, etc how someone is feeling and why. Some times for some people there's no real reasons and answers really. Whether someone has nothing or everything, no one should be misunderstood for being ungrateful to life. It doesn't necessarily mean we are ungrateful to what's around us only how we feel inside.
The tricky thing is that it's understandable that we don't want others knowing our business or and we are careful who we tell what and trust is a very hard thing even though a lot of services have to work around confidently but all the same it is understandable how many of us don't comfortable going for counselling, emotional support etc.
 It's not anyone's rights to force information out of people but all the same suffering in silent doesn't do us any good either, even more concerning if or when there's not a reason we feel as we do. When I had my break down in 1997 which was pretty much when counselling and emotional support services became possible I refused to try at first I was worried that others would have thought I was out my mind and going round the bend, even though I told a lot of people how I was feeling but then I had a lot of people telling me I just had to get on with life, which I understand I guess thinking about now not many people knew what to say to me other than that but it was and wasn't making positive difference in life. When I picked up the courage to go for counselling, emotional support etc I found, I wasn't of course what to do but empowered to a point where I was telling my counsellor at the time what I was going to do to move my life forward and how which was that I got myself into writing poetry but other people find other ways to move forward. No one can force anyone to do anything but there's help no one has to suffer in silence. However'  funding needs to be putting into these services because the worrying risk is that more people will be suffering in silence and more risks of people taking their own lives, which the numbers in that are high enough already we need to try and bring the numbers down or none at all.

Learning disability placements for student learning disability nurses.

https://www.healthcareers.nhs.uk/explore-roles/nursing/roles-nursing/learning-disability-nurse?msclkid=5e0da4a8e9ee13afe2e3f95b2b989ba5&gclid=CNG91N6Ls-YCFcZHGwodiGoJIg&gclsrc=

https://www.mencap.org.uk/?gclid=CL3C3M6o-qsCFcRO4QodcRHSlQ
https://www.mencap.org.uk/about-ld?gclid=CjwKEAjw1Iq6BRDY_tK-9OjdmBESJABlzoY7qA1zUG7gdV00JMBxMWmecoqorTcDHEyhjOix1uA4ehoCAkvw_wcB
https://www.mencap.org.uk/welcome-our-website
https://www.rcn.org.uk/professional-development/publications/pub-005769
http://www.sandwell.gov.uk/info/200220/disability/2361/day_services_for_people_with_learning_disabilities/1
 Possible work placements could be Day centers, Schools, places like creative support. Changing Lives, which is based in Walsall and Wolverhampton I think supports women with disabilities etc, and their familieshttps://www.changing-lives.org.uk/services/

Special education, schools, colleges, universities, etc. https://www.totaljobs.com/jobs/special-education/in-west-midlands
 Options Employment, Advocacy, Mentoring, Support work role, Social Services, Health, etc.

Moving forward from what we did in October.

HELPING YOU TO SUPPORT PEOPLE WITH DISABILITIES OR AND ALL PROBLEMS AND HELPING YOU TO THINK ABOUT YOUR PLACEMENT.

YOUR STUDYING PLAN WITH 7 TASKS.

What a learning disability and or other problems?  Dyspraxia, Dyslexia, Autism, what else?
When and how can disabilities or and problems happen? Before, during or after birth,
How do disabilities or and other problems affect lives? household skills, education, finding a job. What else?
The positives of disabilities or and all problems. Arts, talents, achievements, etc. What else?
How can you support people's disabilities or and all problems?
Name forms of communication. For eg; sign language, mackintye, non-verbal communication, verbal communication. What else?
About accessibly/ accessible information, easy read, etc. What else?


Studying advice, you may look at loads of hands, etc and think, oh no I have I got to do all this one go? I haven't got time for this I have to do etc, etc so.  No, you do not have to do it all in one day. I can't speak for the other lectures and the work they may give but I'm only at the university less than part-time so there's no time limit with me but just because you won't see very often doesn't mean I won't interested in what learn you off me. Feel free to drop an email even if it's very small amount of information to tell me what you have learned and anything you may want to ask me etc, even if it's not everything I say and as long you are learning something off and that I have achieved teaching you as much as you may learn of me, my email is sarajgorman@gmail.com. I hope this website helps as well as my teaching session when I'm in Unversity. Those who may be on facebook please feel free to join my disability facebook group which covers mostly what will be learning off this course in the 3 yrs you're in the university, it's called Always Learn About Disability And Or All Problems + Never Judge Them, thank you.

 I understand you won't have time to do a lot at a time with placements etc. I would advise you to do at least up half-hour study either a task at the time starting from, for eg; what is a learning disability or even just a paragraph, however much you have time for.

You need to look at how people with disabilities or and all problems want or and need to be supported. This could mean looking at a person's center plan or care, which could be mean many things like housing, do they want to live alone or do they want to live with someone? Other examples of making friends, partners, connecting with family or and moving into adulthood, one, some or all of those, maybe even other things.

Just to say sorry to those of you who may be on my Learning Disability group on Facebook for changing name because of an ex Admin having removed a lot of people off this group. I changed the name because most people may have thought we have either closed the group or blocked them even though I did Pm most people to invite them back, think some came back and some didn't. Here it is under a new name anyway. https://www.facebook.com/groups/1946122655508315/?ref=group_header https://sararevealed.blogspot.com/2019/12/living-with-disabilities-or-and-all.html?fbclid=IwAR1wQAEcyvfdMSecrA8jIxyl_y0XIollcDgRYkdYPzJgOZNXHiUJ2rTMGh8

What is Dyspraxia?

Dyspraxia is a hard disability and mental problem to explain and understand. Many people have already lived
with Dyspraxia our lives being misunderstood and being told that we are a danger to society. The world understands that the world can know everything right away. No one is blaming anyone but if Dyspraxia was understood many years, we may have had the right support and may not have been classed health hazards and useless people. This disability has caused us to be made to feel guilty for things we can't help and also caused us to be hated by the world. We understand it's understandable in one way for the health and safety of others but not the fault on the purpose of the people who have disabilities. The awareness is good but all very well to raise when there's not the money in the world to support it. One thing is raising understanding of Dyspraxia so we can be at least understood for what our disability is about.

Dyspraxia is when people are unaware of the world around them. It's too easy to not look where your going, bang into things and people around you. People with Dyspraxia can find physical and mental skills hard. Dyspraxia is mostly misunderstood has been a danger to society, which you are but with the right support you can get by in life.
 The reason for Dyspraxia being misunderstood is because it's a hidden disability. Yet with Dyspraxia being a lot to do with the body and brain, even though it's hidden because people can walk and talk it's more major than those disabilities who need 24-hour care in everything. The advantage is that people with Dyspraxia have the ability though to ask for help if we need it. There's just a wide circle of skills we find hard. The cause of being misunderstood is the fact we can walk and talk so people think we can manage our lives the same as them. Dyspraxia is a Motor skill and coordination disability but it is also can be a reading and writing disability not much different to dyslexia.

For eg; a baby may find it hard to roll over, take longer to stand up and balance, walking, climbing, slower to talk and be understood.

Exercise may be harder to access, some people may only manage swimming, exercise or and even horse riding. Some people may not manage to ride a real bike. Some people may find it hard to hop, jump, run fast and even skip. Some people may find it hard to throw and catch a ball. Some people may find it hard to stand for a long time.

 Children may be slower to walk up and down stairs safely without support. There are some stairs even adults and teenagers may not be able to manage without support. Some stairs can be harder for some people to manage than others. Some people find it hard to dress, tie shoelaces and etc.

 For most of us, it can affect our lives with not being able to drive a car and not being able to have children because of carrying and lifting. As time goes on support get's better in some ways but not in others. On the other hands with the cuts, the government is making it's hard to say what the future is.

Other examples

• Doing jigsaws
• Gripping pencils
• Playing games
• Mixing with people
• communicating 
• Reading
• Writing
• Emotional problems
• Poor short-term memory
• Using a knife and fork
• Carrying hot drinks in the left hand or and you may be only able to carry one hot drink at a time.
• Personnel care for eg; cleaning teeth, washing hair, shaving, cutting toenails and etc.
• Emptying the hoover and putting it back together again.
• Finding it hard to understand people and make friends.
• Poor vision
• Sensitive to light
• Sensitive to nose
• Sensitive to touch
• Sensitive to taste
• Lack of awareness of the body-positive, space and spatial relationships.
• Hard to take in information.
• Hard to keep tidy.
• Cooking for eg; carrying heavy joints out of the oven, chopping up and straining veg.

• Hard to learn sounds, movements, and proofreading.
• Hard to concentrate on too many things at once.
• Slow to do a job and finish it.
• Daydream be in a world of our own.
• Find hard to listen to people in groups and take in what they say.
• Finding it hard to understand people and be understood by them. 
•  Change can take a while to get used to whether it's good or bad.
• Good and bad days for eg; something we managed great yesterday we are coping really bad today.
• Some skills we just never manage but others we manage for life.
• We may get frustrated and angry easy.
• We just might give up if people give up on us too easily.
• We may be stressed and anxious easy.
• We may feel low in our self-esteem. 
• We may get upset easy.

Other awareness of the disability.
Some people with Dyspraxia have flat feet but I also have wide feet. I have really bad problems getting shoes to fit me. Some people even find it hard to type and grip the mouse on a computer. My problem can be I type so fast I don't notice my spelling mistakes and the words I have missed out of sentences. Some people find it hard to plan things. Some of us have poor relocating cannot look quickly and effectively from one object to another, looking from the television to the magazine.

Although there seems to be a lot of things that we find hard, there are some things that get better through our lives. I still remember as a child finding it hard for a lot of years cutting meat up with a knife and fork. In some cases, if someone is on some medications the side effects can make life even harder for them. If you have a lot of problems with hands, some medications can make them worse, which makes some people shake.  Not everyone finds the same things hard and not everyone finds the same things easy. I even find some things I just have good days and bad. Strangely in some things, there are some weaknesses that can turn into confidences because with this being a lifetime disability you become used to what you can and can't cope. The fact that we are keen, willing people because we find so many things hard we don't give up until we achieve what we want to. Sometimes though society gives upon us. To start with it may seem hard to believe that there are positives in Dyspraxia but it takes a long time to believe in that, your disability and most of all yourself. You can find so many things hard yet it's to believe the bad as well as the good because you don't appear to strangers to have disabilities.

Our lives aren't all black and white there are positives about us yet some are the things we do find hard.

• Some things that we may see different from other people can be right.
• We find it easy to get along with people if they understand us and we understand them.
• People need to give themselves time and time to get to know one another.
• We can be carrying people who need support as much or if not more than us.
• We have powerful and creative imagination in our daydreams.
• We are very keen learners despite finding learning hard, nothing stops us.
• We have good long-term memories.
• We can create for eg; creative writing art painting and drawing. 

The causes of Dyspraxia.

As far as I know, Dyspraxia is caused by a lack of orgxen to the brain at birth or when a baby is born too early. I think this can be linked to epilepsy or and a stroke. I think are many other causes of Dyspraxia.

Different forms of Dyspraxia.

It sounds as if the world has a lot to learn about Dyspraxia, which is hardly surprising as it's a hard disability to understand and explain. Just because I am Dyspraxia, doesn't mean I know everything about it. In my respects, the world knows more than me. What I do know is how it has affected my life. I am glad to say now it has opened up now. There may have been thousands of children in my school, I would have been aware but I doubt it. I know what it's like to feel so alone even though you are more than likely not. Bullying never seems to stop because you look and or seem different from other children. Even by adults your so misunderstood because quite rightly even adult expects to see a normal child, whatever normal is at the end of the day. Putting yourself in the shoes of parents, life can be a jigsaw puzzle for them when their child is slow at learning or and they know what their disabilities and health problems are.

Movements are to do with Motor skills, Co-ordination and balance. For eg; opening a tin with a can opener.
Language is speech how we sound, make ourselves understood and misunderstood mostly the cases are.
Perception is Understanding and or misunderstanding others, messages, the world around us and etc.
It's more likely possible to have all of those forms of Dyspraxia as I have found all those things hard throughout my life. Having said that when you have a good many other disabilities it can be hard to say what causes what. For eg; I could either Asperger Syndrome or and ADHD, Dyslexia, Epilepsy as well as Dyspraxia. could have one form of Dyspraxia, two or all three. I know what I read about Dyspraxia sounds like me.

Sometimes when I am speaking I find it hard to swallow when I speak therefore no one understands me. I have always had problems with my tongue, teeth, and lips which goes very dry as skin becomes loose. Even though I feed myself, I'm still a very messy eater. As a very small child I found very hard grip a knife and fork I think food used to go everywhere other than my mouth over the floor everywhere, although I don't see how I've always loved my food too much and ate too much.

Some words I may say may not come out correct but may not be far off, otherwise, I'm well misunderstood. Sometimes I may talk too quiet in case I don't sound like how I want to sound like. Yet when I am sure of myself it works opposite I can be too loud.  

Some famous people with Dyspraxia.

Daniel Radcliffe plays Harry Potter, David Bailey who takes pictures, Florence Welch, Hannah McDonnell actor, Helen Burns character out of Jane Eyre, Samuel Taylor Coleridge poet, CK Chester, Ern est Hemingway, Jack Kerouac, and George Orwell wrote.

Dyspraxia needs to be taken seriously.

My name is Sara Jane Gorman, I used to work for a Public Advocacy service called Our Shout Wolverhampton supported by Royal Wolverhampton Mencap. Now I work for the University Of Wolverhampton as a Vist Lecture educating and training Student Learning Disability nurses around Learning Disability and Mental Health. For a very short time, I shared a very small business well Enterprise with someone with learning disability from Mencap, we were called Access All Areas Now and we were Learning Disability Awareness trainers and I achieved my level 1 and 2 Mentoring qualification from January 2018 to June 2018, received my certificates in 2019.

I was born in 1969, with a lack of oxygen to the brain, therefore, I was a child of the 70s, a teenager of the 80s and a very young adult of the 90s and I'm now 50 yrs of age. Very little was known so there was very little support or none at all. Therefore there was no diagnose of what my problems were and to be for the rest of my life but as years went on there started to be plenty of research. Both I and my family knew the difficulties I faced. My family mainly watched films, read books etc to find certain difficulties I faced were named but not 100 percent sure, which is why whatever you face it's important but not always possible to get diagnosed as early in life as possible. As I have said in so many words I have never been diagnosed because my problems were unknown in the early stages of my life which makes me want the opposite for others today and in the future.

These problems I face Autism, Dyspraxia, Dyslexia, ADHD, Anxiety, Depression, and Epilepsy.

For the last seven years, I have been working for the University Of Wolverhampton, it's been a great experience still teaching and training the Student Learning Disability nurses around learning disability and mental health. I became a visiting lecturer in  January 2015.

Dyspraxia needs to be taken more seriously, it's not an illness or disease, it's long-term condition and learning difficulty that can affect people physically and mentally but mostly physically. It's hard to see because most people with Dyspraxia can walk and talk. With the right support, people with Dyspraxia can have equal lives for other people. People Dyspraxia can have careers just with the right support and right jobs for them and the same with other parts of life really.
However' it's important to expect anything from anybody, I can only speak from my own experience, it could well vary from person to person, not be the case for every facing the condition facing the same or all the same problems.

I feel it's important that people with the condition get a lot of support but due to funding and that it's not always possible. However' some may need more support than others.

My reasons are because Dyspraxia has been a huge effect on me having a  physically more so than mentally, such as trying to do up shoelaces, zips, buttons, etc. It's affected me from having children, which was very furstraighting when I was in my mid-teens to twenties etc. Babies do riggle and not excepted to wait until for example; you have put their right feet in the feet of their baby grow lol, which seems hard to explain in writing, meaning I'm not physically strong, mentally strong in some areas but not in others. 

Basics of learning disability, Mental health and all problems 1ST YEAR STUDENT LEARNING DISABILITY NURSES AT UNIVERSITY 2020.

What are your answers?

What a learning disability and or other problems?
When can disabilities and all problems happen?
How do disabilities or and all problems happen?
What types of disabilities or and other problems are there?
How do disabilities or and other problems affect lives?
The positives of disabilities or and all problems.
How do you support and find support for people with disabilities or and all problems?
About communication.
About accessibly/ accessible information, easy read, diversity, etc.

Here's mind.
Examples; epilepsy, autism, anxiety, depression, ADHD, Dyslexia, Dyspraxia, etc.
Before, during after birth.
Neglect

Mother unwell during pregnancy

The person themselves may have a bad fall. 
Home, education, employment, health, social lives, etc.
Talents, being creative in education and work.
sign language for the deaf, easy read clear pictures, large print writing.
Wheelchairs, walking frames, ramps, etc, grippers, more space for parking, etc such as footpaths, etc.

How people with disabilities, mental health other problems copying in lockdown.

Information on the flu jab and coronavirus vaccine for people with disabilities, mental health, and all problems.  

https://www.supportline.org.uk/problems/disability/
https://www.mentalhealth.org.uk/learning-disabilities/a-to-z/l/learning-disabilities
https://www.theguardian.com/inequality/2017/nov/15/whats-life-really-like-for-disabled-peopld-disability-diaries-reveal-all
https://www.helpguide.org/articles/autism-learning-disabilities/learning-disabilities-and-disorders.htm
https://en.wikipedia.org/wiki/Disability
https://www.gov.uk/government/publications/disability-facts-and-figures/disability-facts-and-figures
https://www.disabilityrightsuk.org/understanding-equality-act-information-disabled-students
https://www.mencap.org.uk/learning-disability-explained/what-learning-disability
https://www.citizensadvice.org.uk/law-and-courts/discrimination/protected-characteristics/what-counts-as-disability/

ACCESSIBLE INFORMATION GUIDELINES PART 5

Information on CD and DVD.

•        Make information available on DVD or CD

•        Make information easier for people to find.

•        Use a buddy system where people have somewhere to go through information with them or ask questions.

•        Some may need plenty of notice before their appointment is due mainly if they have a lot of other things to think about disabilities and health problems on top of that.

•        Sent information at least 4 weeks before appointment or meeting people may need or and want to go to.

•        This will give people time to get help if they want or and need it.

•        This also may help most people understand the information.

•         Contact WWW.officefordisability.gov.uk accessibity@mencap.org.uk 0209 696 5551 check if those contact details are still in use if not find out if anything is in place of them and what!

•        If you want to produce all or part of this guide please talk to us.

Effects of Dyslexia.

•        Too much to think about all at once can cause either.

•        To think too much.

•        Not able to think at all.

•        Information is missed out or too much done.

•        Things can be the wrong way round but the right information.

•        A lot to be done in such little time can be too much.

•        Is there anyone who has Dyslexia who would like to talk about it?

Dyslexic Aids.

•        Coloured layouts

•        Highlight pens

•        Fober castell grip 2011 propelling pencils.

•        WWW.thedyslexiashop.co.uk stationary for Dyslexic people.

·                     https://disability.unt.edu/

•        Easy read information.

Has anyone got any questions?

ACESSIBLE INFORMATION GUDIELINES PART 4.

One subject on-page.

•        If you have to use more than each page with more whenever the subject is.

•        Use page numbers.

•        Avoid columns.

•        Using photographs by asking permission off different places first.

•        Photographs should be nouns people.

•        Places and objects.

•        Writing on the right-hand side.

•        It could be different if you are writing in another language.

•        Do not float text on top or across the page.

Useful tips.

•        Show pictures of a clock with the right time you may want to see a person on whatever for eg; if you can.

•        Some people find cartoon pictures childish.

•          Explain how to find a place in words as well as pictures.

•        Some people find a pretty poster on a leaf it easy to understand.

•         Some may like shiny paper others may not. 

•        Some people make it hard to see words and pictures.

•        Some people find an A5 notepad or book easier to hold rather than following lots of sheets.

ACCESSIBLE INFORMATION EASY READ PART 3

Codes and colours.

•        If you are writing a lot of pages use colour codes.

•         Use clear coloured paper.

•        Green is not a good colour to use.

•        Words in white (reversed out text) on the coloured background can be harder to the read.

•        Some people might need things to be printed onto coloured paper.

•        Remember not everyone manages with colour so ask them first.

•        Use full stops.

•         Try not to use other punctuation.

•         Use bullet points.

•          Do not use abbreviations for eg; don't.

•        One subject on-page.

•         If you have to use more than each page with more about then whenever the subject is.

•         Use page numbers.

•          Avoid columns.

•         It's easier to read across the page.

•        Make sure there is plenty of space on the forms for people to fill in.

ACESSIBLE INFORMATION EASY READ PART 2.

Font.

•        Ask the person how they would like the information?

•        What font would they like?

•        What size fond would they like?

•        Bold, underline, italics and or etc.

•        Some may want their information written in Comic San, Ariel, or by FS Mencap.

•        Use bold for highlighting words.

•        Use size 14 text.

•        Titles and headings size 16 for bold.

•        Comic San, Ariel or by FS Mencap.

•        Italics and block capitals change the shape of words and make them hard to read.

•        Instructions and directions in bullet points or for eg; ABC 123.

•        No jargon and no words jumping off the page, which means large print for it to be clear enough for people to read and understand.

•        Jumping from one topic to the other makes it harder for you to write and us to read.

•        Something clear and well planned with all key point information.

•        Easy read works for everyone but different people see easy read differently in different ways.

•         This could mean different coloured writing on different coloured paper.

•        Different coloured writing on different coloured paper.

•        Would they like colours would like for eg; some people may like pink purple writing on pink paper.

•        Ask people kind of colours they would like!

ACCESSIBLE INFORMATION EASY READ GUIDELINES PART1.

Accessible information you may use for someone who is Dyslexic.

The accessible information guidelines are not only there to support people with Dyslexia but other disabilities and health problems too. The guidelines will help people in different ways, but they won’t always help everyone. I will underline the guidelines of what could be likely to support most people with Dyslexia.

•        People with disabilities understand it’s not always easy for people to make information accessible for us due to cuts in funding and materials different places have got. 

•        All the same, it doesn’t mean we shouldn’t be asked what is accessible to us so you are aware of how you can make information accessible if or, and, when what you can.

•        Ask people what is easy to read to them!

•        Ask people with learning disabilities how we would like our information done!

•         Does the person need larger print?

•        Do some people like most of their information in bold?

•        Would people like their information in a different way?

•        Use words that we use all the time.

•        Write in short word and clear short sentences.

•         Just have one idea in each sentence.

•        This means shorting words or a few letters.

•        Using fewer words

•         You may need to look in a thesaurus to find short words for long we word.

•        People with disabilities understand there are some short words can't always be found for longswords, they may need to understand what the information is about if you can’t make it an easy to read for them.

•         Most people may not be able to read or and understand long words that you can't find for short words.

•        Use one active verb for eg; John loves Mary, not Mary is loved by John.

•        Think about key points that can be made easier for the person!

•        Don't use words that the only specialist would understand or acronyms.

•        Write words that we use all the time.