Feedback from last year’s first year on the
benefit cuts awareness session.
I am a trainee visiting literature so I can learn
off the students what they want to learn and how they want me to teach them as
much as they learn of me.
I would also like this year’s first year to learn
from this feedback of the sessions of what I did with last year’s first and
second year plus last year’s 3rd year. Hopefully during in your
three years of being at the University I will be doing some work around the
benefit cuts with you so this study is to prepare for whenever that time comes.
In future each time I do a session off each class I
will write up the feedback on here for other classes to learn for other
sessions not only what you may have with me but other Literature too such as
Lynne, Steve and Mick over all topics.
Benefit
cuts awareness Feedback.
I really emphasised with what Sara was saying. I could see that the benefit system doesn’t
seem to understand nor care about people with LD.
It was good that Sara highlighted the emotional,
physical and psychological problems facing people with LD. It is bad that the
Government, who are meant to be looking after the people, have put laws and
systems in place that leave people with LD in such distress.
People with LD can experience anxiety, depression,
suicidal thoughts, illness, lose their homes, be without money for long periods
of time, due to their benefits being stopped or assessed.
It was good that Sara highlighted the emotional,
physical and psychological problems facing people with LD. It is bad that the
Government, who are meant to be looking after the people, have put laws and
systems in place that leave people with LD in such distress.
People with LD can experience anxiety, depression,
suicidal thoughts, illness, lose their homes, be without money for long periods
of time, due to their benefits being stopped or assessed.
People with LD need as much help as possible when
it comes to benefits. And as future LD nurses, we will be aware of their plight
and in a position to help with applications, as advocates, and with calming
their fears.
At this particular moment in time it is all about
awareness, understanding, and empathy.
If a LD nurse is aware of the issues then we will be in a better
position to help people with LD who is in this situation.
Feedback from the session I did for the
students a couple of Thursdays ago.
Last year’s 2nd
year Student's feedback from the Benefit cuts awareness session Monday 11th May
2015 University Of Wolverhampton Walsall Campus.
Benefit cuts:
· Services cuts / already some services are closed
· Limited / no respite services for families
· Increased crime figures due to cuts?
· Lack of support in the home people are just left to
cope alone because of lack of funding
· Mental health problems increasing
· Isolation / decreased socialization lack of
activities
· Increased immobility = health issues
· Government plans to be aware of these so as to help
service users
· Community after hospitals closed but there is ever
decreasing support available
· Increased likelihood of not getting roles due to CV
changes or limited chances
· Job centres not always in line with work areas –
availability of posts etc
· Increase in homelessness
· Poverty
· Suitable job – not just any job
· Direct payments = effects on people
· Abuse of the vulnerable
· Increase
in protests / strikes?
· Lord Willis Raising the bar report http://hee.nhs.uk/wp-content/blogs.dir/321/files/2015/03/2348-Shape-of-caring-review-FINAL.pdf
Feedback on the benefit cuts awareness
session from last year’s 3rd year.
I am glad you
enjoyed the presentation; my confidence and presentation content those of you
who were in my session.
I am glad you have
learned how to help people who have had their benefits cut.
Yes this topic is
your role when it comes to looking out for your patient’s health.
Sara’s feedback: I
am very happy that you’re happy with with my feedback. I have learned as much
from the students as they do from me.
Each session I do I will learn better for the
next time I do a session? I feel I remembered to explain more what a student
job role is this time than I did last time. The role of a learning disability
nurse is looking for the health of learning disabilities and health problems.
The state of the system with services going through cuts and benefit cut is a
huge risk to the health of patients.
The changes that
need to be made are that the health needs of people with disabilities and
health problems need to be take care of to save lives. People with disabilities
and health problems are human just like other people so do their lives matter
just like other peoples.
I am glad you have
learned about the insight of the benefit cuts and how they affect people with a
learning disability.
How the benefit cuts can affect all people.
Sara’s feedback
is. This is an important question but a
hard question really. The amount of people on the benefit system is very high.
A lot of people are on there for different reason. There some peoples’ reasons
that are not good enough reason to be on benefits, which make it hard for
people who have good enough reasons to be on benefits. For example people who
don’t want to work most of them may have a lot of children excepting the
government to pay for them. Even most people are pretending they have
disabilities and health problems but they haven’t so they don’t have work. Even
those who can’t seem to find a job but they have tried for a lot of years yet
some have never done a hard day’s work in their lives. The answer to this
question is yes and no because everyone’s reason is different but not
everyone’s reason is good enough. Nine times out of ten those who want to work
can’t and those who can don’t want but it’s not the case in everyone. This can
depend on the proof they have got but the worry is I guess for Learning
Disability nurses it could be hard to really know other for those who have
really strong proof.
Think about your
Person Centered Planning!
Think about how
much choice and control that person has.
When it comes to
someone working and someone not working you will come across all kinds of
cases.
For example people
with disabilities and health problems with most people. There could be not that
they can’t work but limits of what they can do, how many hours they can do and
how much money they can earn, onto of whatever benefit they are on for those
who have got their benefits.
Before doing this
job you need to be asking your manager because they have to follow certain
rules, laws, policies and etc. Whether they are on benefits or not when it
comes Person Centered Planning. What means by there are some jobs that some
disabilities and health problems stop people from doing but their other jobs
that their disabilities and health problems don’t affect. Whatever job they are
in for that person’s health and safety it’s important they are support mainly
they are put into work that’s not for them for whatever reason, either they can
manage the job, their health and safety is in risk both reasons in the case may
be. Where you job comes in is if your patient provides you with any proof that
they are not getting support in the workplace. If you see any reasons for that
person to need support in the workplace due to their disabilities and health
problems, it could be for example there are limits of jobs this person can do
and the person’s health and safety could be at risk for whatever reason. It
should be your right and your job in certain of the patient put something in
writing to the workplace if the person’s GP doesn’t do so. You could well be in a position to contact
the person’s GP to ask why they may refuse to write the patient proof on this
possible important matter.
Put yourself in
someone else’s shoes.
Yes you need to
tell your patients the truth but then you wouldn’t like someone telling you
what you can and can’t do.
What may these
things may be?
·
Having a home of our own or sharing with whomever
we want to share with.
·
Coming off benefits into full time work.
·
Going to college or university.
·
Going out more in the day and or night when we want
to.
I am glad you
enjoyed the discussion and benefit into people with a learning disability.
Sara’s feedback is
how could I improve my session?
Please say a bit more
on what you enjoyed my session!
Please read more
on the handouts on my website sararevealed.blogspot.com/ and give me some
feedback on sarajgorman@gmail.com thank you.
I am glad you
enjoyed listening to my PowerPoint.
They thought it
had an insight about the effects of benefits.
They want to learn
more about how the benefit cuts affects people with disabilities and health
problems.
Sara’s feedback:
please learn more my website sararevealed.blogspot.com/ feedback to me sarajgorman@gmail.com thank you.
There are many
sites you can go on that you can learn about what people go through they have
their benefits cut or stopped.
The kind of
benefits there are, how they are, how much money they pay and the rules people
have to go along when being on these benefits.
How it affects
people with disabilities and health problems face through the benefit cut
pretty like I said on the PowerPoint.
·
No
money or should I say very little money!
·
Worrying
what’s going to happen one minute to the next let alone one day or week to the
next. (Anxiety). For example worrying about owing money.
·
Risk
of people taking their own lives. (Depression).
·
They
don’t like depending on food banks so they can feed themselves plus food banks
can only give so much.
·
Losing
weight.
·
Even
risk of getting into debt even if for example they paid their bills and buy
food.
·
Most
people may not be able affront to buy healthy food depending the shops by them,
whether or not they get support to travel to shop if they only can get healthy
food further afield.
·
It
could also depend whether or not their disabilities and health problems prevent
from travelling without support.
·
One
thing I even forgot to say even on my website is, if their benefits are cut
they only get their DLA or PIP once a month which pays for shopping and bills
but doesn’t necessary last that long.
·
Most
benefits may pay for a carer or and support worker others may not. https://www.gov.uk/dla-disability-living-allowance-benefit/overview
·
Risk
of people going hungry or in debt.
Risk of people
being from service to service with no help prevented can be a huge affects on
their health with Anxiety and Depression.
Thank you so much for your great feedback I’m
so glad you enjoyed listening to my information. I am just so sorry about the
limit of time so yes please look at my website to learn more thank so much for
taking time to be in my session and I thank you everyone as well for your
patience’s in yesterday’s class.
The risk can be with
most people there doesn’t seem to be very clear information people with
disabilities and health to when they have go through when they are going
through benefit change. For example: DLA changing to PIP some people have gone
through it others haven’t. Most people worry like myself for example when am I
going to get this over and done with? Benefit letters don’t seem to be very
clear and there’s far too much information in those letters for a lot people
with disabilities and health problems to read and understand. Due to the cuts
now very few people have carers and support workers plus everyone’s family can
be different so there are worries that nothing has been done if people with
disabilities and health problems can’t support read and understand the letters,
the worry is for some people things can get left alone time before anyone sees
the letters.
Here some
communication websites https://www.mencap.org.uk/about-learning-disability/information-professionals/communication/communicating-people-learning-disability
PCP Person Centred
Planning?
What is Person
Centre Planning? Person Centred Planning is giving the same choice and control
as what other people get but with the right support, which is not always the
case for people with disabilities and health problems. There needs to be a
balance between independence and support.
The beginning of
this year I asked last year’s second year students to what they want in their
lives. Now no one is saying that everyone can get what we want we know life
isn’t like that. Everyone knows they can’t have it their way all the time. For
people with disabilities and health problems our rights seemed to be over
protected compared to other people because of our disabilities and health
problems in the minds of society. We can be over protected by such people as
families, parents, Support Workers and Carers but with the right support we
there should be a way round independence and support as a balance.
Now that the cuts have come in a lot it makes it harder for people with
disabilities and health problems to live our lives how we want to.
·
I think we need to
be working a lot around accessible information on this topic like many others,
such as a lot easy words and pictures.
· When I
was a child I was on very strong tablets as child which made me unaware of what
was going on around me.
· There’s
been very little understanding from Health professions back in those days going
back 30 to 40 years ago even up to 10 to 20 years ago, it’s now got better but
we still have long way to go.
· I would
have thought pictures would be easier to understand in the terms of a Health
profession telling a child what is going to happen to them step by step.
·
They maybe lot of medication they can find it hard to take in information.
· Lots of
medications can affect a person’s memory.
· There
may have problems taking in what they have read if they can read or what
someone has said to them.
· It is
natural if a person’s awareness is affected by medication by too much
medication or a very strong dose.
· The
person may need someone there to speak on their behalf but otherwise they
should be able to have the capacity to speak for them as much as possible.
·
Health Professions should listen to the person more than someone else who may
be sitting in the room.
· it’s
possible that the person or whoever is in the room may have different view on
whatever, which could make the Health profession’s job very hard but that could
be depending on the person’s situation, abilities, needs and support.
What is stopping
us doing what we want to do?
·
Family, parents, carers and some support workers.
·
The government and their cuts.
People with
disabilities, health problems and the elderly have less choice and control than
other people. Not all vulnerable people have the same independence and they don't
all have the same support either. Society controls different people's lives in
different ways.
How does someone
know when to support and when not to?
Different people
with disabilities and health problems have different disabilities and health
problems so they need their support and independence in different ways.
Everyone has weaknesses and strengths whether they have disabilities,
health problems, and elderly or not. There are some new skills our disabilities
and health problems will allow us to learn but other they won't depends on what
disabilities and health problems we have got. Its needs to vary from support to
independence by getting the balance between the two.
Person Centered Care.
The word person - centered means the person themselves, their choice, their control and their life but support should be given when it's asked. Many people tend to think that some people don't ask for help when it is needed, yes for most people its true. Very often the reason for that is mainly when it's comes to today's world a lot of services lacking funding due to the point a lot of people give asking for help and they are left to do without the support. Yet more often than not the odd bit they may often could be on things on what they can manage without help.
The idea of Person - Centered care is to see that the
person get's the care they need to their choice and control and to balance with
the family's thoughts too. A lot vulnerable people have been cared for wrongly
in the past and even been neglected. A lot of vulnerable people and even their
families have lost have lost a lot of trust and faith in services because they
have been badly let down in the past. This could mean hospital's dentists,
doctors, employment services, education services or anywhere.
Here's link about Person - Centered care in nursing http://www.open.edu/openlearn/body-mind/health/nursing/the-importance-person-centered-approaches-nursing-care
User friendly is
about been friendly towards people with disabilities and health problems. How
would you like to be treated and spoken to? People with disabilities and health
problems like to be helped when it’s needed. Just because people with
disabilities and health problems need help more than others people shouldn’t
treat them like babies and small children. Everyone needs help at some time no
one should be wrapped in cotton wool to a point they can’t live in the big wide
world. Why should people with disabilities and health problems be treated any
different to other people just because we need more help than other people?
History of how
people with learning disabilities and health problems were treated.
In the past in war
times, Adolf Hitler came into power in 1933, roughly six years before the war
broke out. The German Nazi party passed a law that called for the sterilization of people with 'diseases' that were thought to be hereditary.
Between October 1939 and August 1941 the Aktion T4 euthanasia programme operated in Nazi Germany. It aimed to rid society of those the Third Reich called 'Useless eaters.' It is estimated that between 70,000 and 100,000 disabled people were killed. Most were large-scale killings poison gas - a technique later used extermination of Jews in 'The Final Solution. This included people with learning disabilities, Mental Health, blind and deaf people.
People with
disabilities have been classed as mental and physical handicap. The reason why
people with disabilities were look upon that way is because no one understood
us and we were a dangerous to society. We were treated very difference to non -
disabled people but Adolf Hitler was against all races. We were very easy to
target mostly by the likes of Adolf Hitler and the Nazis in World War 2.
Hitler finally
called an end to the T4 programme following pressure from church and public.
However, killings continued until the end of the war, often by lethal injection
or starvation.
This was because all disabled people were seen as depending on the care of non - disabled people, which was hard work for the likes of Adolf Hitler, he saw people with disabilities as useless. Hitler didn't only hurt people with disabilities, he had a big problem with race full stop. For eg: he didn't like you if you were a Jew or if you were gay.
These day people with disabilities are feeling less useless and less guilty of how our disabilities affect our lives. There's a lot hard work to do yet. There are still people like Hitler about. We are all human beings whatever our race. We are human whether we have a race or not. Whatever kind of person we are we are there by choice or none at all. How people are in their race shouldn't worry you, there is more to everyone than just race. We all know the world is not perfect but let’s have far less Hitler’s now if not at all.
We would like to think things have moved since then but no. There's a bog concern that people who have their benefits cut get force into work they can’t without support by such places like DWP. If you or anyone you know have faced these experiences you are more than welcome to email me on sarajgorman@gmail.com
EXAMPLES OF HOW
LIFE WAS FOR PEOPLE WITH DISABILITIES IN HISTORY.
Today the
hospitals would have been paying a lot out of money for families who have
experienced
neglected births. I was born with lack of oxygen to
the brain. This is was what caused me to have autism, epilepsy, dyslexia and may be even dyspraxia, which most things weren't known about. I know I never been badly disabled but I could have done without with what I was born. My Family couldn't claim any more in those day or they didn't know they could. I was born at the Beeches
old Nursing home on the Tettenhall road Wolverhampton; they neglected my Mum when she was having me. It doesn't mean I would have expected any of the money. In those days you had Terry toweling nappies and you were lucky if you had a washing machine, my Mum didn't. My family could have done with the money at that time because I had to wear nappies longer that I should have. It doesn't mean to say that all these unnecessary things have stopped today. We would like to see that families and carers of people with disabilities get more support in everything that what we did.
neglected births. I was born with lack of oxygen to
the brain. This is was what caused me to have autism, epilepsy, dyslexia and may be even dyspraxia, which most things weren't known about. I know I never been badly disabled but I could have done without with what I was born. My Family couldn't claim any more in those day or they didn't know they could. I was born at the Beeches
old Nursing home on the Tettenhall road Wolverhampton; they neglected my Mum when she was having me. It doesn't mean I would have expected any of the money. In those days you had Terry toweling nappies and you were lucky if you had a washing machine, my Mum didn't. My family could have done with the money at that time because I had to wear nappies longer that I should have. It doesn't mean to say that all these unnecessary things have stopped today. We would like to see that families and carers of people with disabilities get more support in everything that what we did.
I know I keep
saying that it's about time people with disabilities started training and
educating non - disabled people mostly to learn to understand is as human
beings. Non - disabled people need to learn that we try very hard to learn from
our mistakes. Understanding us would be a big help to create a better future
from having to learn from a very dark past now it's the 21st century.
All my family had extra hard work with me due to my disability, support was very little or not at all.
I think it took years to diagnosis my disability, now I don't think even now we are really sure whether I have autism or not. We know I have a disability of some sort for sure. Who knows if we have been told the truth or not? We know for sure that I have epilepsy because I had it in the past and it came back.
As for being hyperactive little did we know that too much sugar and may be even too much salt can cause some people be hyperactive mainly children, even now that we have been told more things, who really knows for sure?
Please drop me an email if you have any views or need any support the kind of subject I have just written about now. My email address is for all subjects to do with disabilities on this website. sarajgorman@gmail.com
All my family had extra hard work with me due to my disability, support was very little or not at all.
I think it took years to diagnosis my disability, now I don't think even now we are really sure whether I have autism or not. We know I have a disability of some sort for sure. Who knows if we have been told the truth or not? We know for sure that I have epilepsy because I had it in the past and it came back.
As for being hyperactive little did we know that too much sugar and may be even too much salt can cause some people be hyperactive mainly children, even now that we have been told more things, who really knows for sure?
Please drop me an email if you have any views or need any support the kind of subject I have just written about now. My email address is for all subjects to do with disabilities on this website. sarajgorman@gmail.com
We
are hard work for society.
· We
are a danger to society.
· We
cost society too much.
· We
are to blame for our disabilities and health problems as far as society is
concern.
· We
are made to feel guilty and ashamed to have been born in the first place.
· We
are only human just like you are so how can society make people with
disabilities and disabilities and health problems feel life is worth living?
· No
wonder the rate of Anxiety and Depression is high.
· What
can society learn from the dark past to create a bright future?
· How
much has got better?
· How
much has got worse?
· What’s
good?
· What’s
bad?
· What
isn’t good enough?
History
of learning disability and health problems.
· http://www.mentalhealth.org.uk/content/assets/pdf/publications/starting-today-background-paper-1.pdf
· search.tb.ask.com/search/GGmain.jhtml?searchfor=history%2C+present+and+future+of+learning+disabilities+and+health+problems.&st=tab&ptb=EAC85840-C98E-43C2-BF3C-
B3E438262E87&n=781aa443&ind=2015011907&ct=SS&pg=
One
straight answer to one question.
Services
need to let all their staff know of any changes in rules not only for people
with disabilities and health problems but for everyone for example; can you
support to fill my benefit form please, it needs to be posted for Monday? The
answer shouldn't be yes and no off different people someone
should know sure, it should be yes or no not two answers to one question one answer to one question.
Communication
website
http://www.specialeducationalneeds.co.uk/makaton.html
Transport
information. Some people have no sense of direction mainly
those people with Dyslexia, Anxiety and Depression. A map that stands out with
different colours would be rather useful for most
people whereas others it could be 123, ABC or and bullet points
for example.
· Turn
left.
· Turn
right.
· Straight
on.
Some
people may want that format in colours for example.
· Turn
left
· Turn
right
· Straight
on
Person
centred planning.
https://www.mencap.org.uk/our-services/personal-support-services/advocacy/empower-me
Today’s
health care for people with learning disabilities and health problems.
Teaching
programme
Paper
Aeroplane.
Instructions
were easy to follow.
For
example someone like me with Dyspraxia may have problems with get the paper
straight and equal.
This
task is an example of teaching all kinds of things such as wiring plug, putting
and light bulb, they may have followed your instructions correctly their hands
like mine may not be strong enough for example to be able to connect the wires
safe and secure into the plug.
A
duvet on a bed cover might not be put into the condors tight enough.
A
lot of equipment has changed compared to years ago, kettles now turn off on
their own but they never used, it used to seem as if the kettle was never going
to stop boiling.
I
was at least fourteen until I made my Mum a hot cup of coffee.
Microwaves
are easier and safer than cookers for people like me to use but then
food doesn't stay hot for long.
Those who need a lot of support to cook fresh food can’t always get that
support to do so. Now that a lot of care and support services need to be paid for not everyone has enough on their benefits to pay
for it.
Clear pictures and easy words could be another easy way
for a person to follow instructions to learn do things step by step but they
may need support to do and complete the task. For other people they may need
support to read the instructions but they may do and complete the task fine so
therefore you won’t find everyone has the same strengths and weakness.
http://www.housingcare.org/service/type-12-aids-equipment.aspx
https://osha.europa.eu/en/publications/factsheets/53
http://www.focusondisability.org.uk/links-1.html
esteem?utm_campaign=trendsetters&utm_source=facebook&utm_medium=cpc
Making and getting
phone calls.
Mainly when making
an important call you can always get to speak someone right away.
Nine times out of ten you get the answer and the person can talk too fast
you. Please leave a message after the tone that is all well and good but not
always when something is important, which can depend when that person can reply
to your message in the first place. It can work the same with emails and texts.
I find they talk too fast when they say press this number for that and that
number for this.
Without
discriminating not many people with disabilities and health problems can
understand foreign languages, mainly those of us who have problems with
our speech which can make it hard for us to learn foreign languages.
This can be very hard if we have made a call to a service and even harder if we
get a call that we don’t except.
Wednesday 23rd
September 2015
Memory problems.
·
What causes memory problems?
·
Dyslexia
· Dyspraxia
· Dimension
· Side effects from most
medications
· Epilepsy
How can you
support memory problems?
Accessible information
(Easy ready).
Forms of
communication.
· Give enough time to listen to
your patient mainly if they haven’t bought anyone with them for support.
· Mackinton
· Pecks
· Sign language
· Flash cards
· Brail
· Touch
· Body language
· Eye pointing
· Tap pack
· IT Communication
· Lip reading
· Face expression happy face,
sad face or and OK face.
Behavior
· Symbol time table
· Thumps up
· Thumps down
· Life stories and pictures
· written communication
· Play studies
· ABC boards
· Talking
· Short form of communication
· Health Passport
·
Verbal
·
Nonverbal
·
Visual
·
Non-visual
·
· Sing-along
for people with Autism
·
·
·
· Talking
mats
·
· Widget
·
· Symbol
world
·
· Clear
For All
What disabilities and health problems would
you use those forms of communication for?
We need to make sure the patient understands all the
information, the information needs to be accessible.
· Easy Read
· Clear written/audio information
· No Jargon!
Your feedback and my feedback to the session.
Feedback from Colleagues. Sara supported the students first session on
this module. She helped them to appreciate the importance of communication. She
led this part of the session. She also assisted me with the remainder of the
session introducing her and helping the students to do the same.
Feedback from students. The students greatly appreciate the time they
have with Sara. They enjoy her contributions to the class and learning
situation.
Sara’s feedback. I and
my colleague Lynne set up the power point for the students to get to know one
another plus we jointed in ourselves too. For example
·
Who
are you?
·
What
are your likes?
·
What
are your dislikes?
The students answered the questions on the Power point by drawing
pictures.
I explained to the students what the PCP Person Centred Planning is,
which is choice and control, the balance between indepence and support.
I asked the students about the forms of communication people with disabilities
and health problems use for example Mackinton.
I asked the students to find out about what disabilities and health
problems can cause Memory problems? Such as Dyslexia, Dementia and even side
effects of most medications.
We even spoke just a bit about (Accessible information) (Easy read.)
There are no changes to be made.
Sara’s feedback to the students.
Evidence of planning.
My feedback the first year students University Of Wolverhampton Walsall.
I hope to be doing some work with the students on Person Centered Planning in the future.
My feedback the first year students University Of Wolverhampton Walsall.
I hope to be doing some work with the students on Person Centered Planning in the future.
Well done to you all for what you have
done but your next stage is to study different disabilities and health problems and
to how these people communicate with other people.
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