What is Person Centre Planning? Person Centred
Planning is giving the same choice and control as what other people get but
with the right support, which is not always the case for people with
disabilities and health problems. There needs to be a balance between independence and support.
The beginning of this year I asked last year’s
second year students to what they want in their lives. Now no one is saying
that everyone can get what we want because life isn’t like that and no one
excepts it to be. All the same reasons for people with disabilities and health
problems not getting what we feel we should have rights to is very often a
different reason to other people, it very often is because of our disabilities
and health problems. We can be over protected by such people as families, parents,
Support Workers and Carers but with the right support we there should be a way
round independence and support as a balance. Now that the cuts have come in a lot
it makes it harder for people with disabilities and health problems to live our
lives how we want to.
· I think we need to be working a lot around accessible information
on this topic like many others, such as a lot easy words and pictures.
· When I was a child I was on very strong tablets as child which
made me unaware of what was going on around me.
· There’s been very little understanding from Health
professions back in those days going back 30 to 40 years ago even up to 10 to
20 years ago, it’s now got better but we still have long way to go.
· I would have thought pictures would be easier to understand in the
terms of a Health profession telling a child what is going to happen to them
step by step.
· They maybe lot of medication they can find it hard to take
in information.
· Lots of medications can affect a person’s memory.
· There may have problems taking in what they have read if they can
read or what someone has said to them.
· It is natural if a person’s awareness is affected by medication by
too much medication or a very strong dose.
· The person may need someone there to speak on their behalf but
otherwise they should be able to have the capacity to speak for them as much as
possible.
· Health Professions should listen to the person more than
someone else who may be sitting in the room.
· it’s possible that the person or whoever is in the room may have
different view on whatever, which could make the Health profession’s job very
hard but that could be depending on the person’s situation, abilities, needs
and support.
· It shows how there’s a lack of communication between health
professions and even whoever is with the person in the room.
· The person with disabilities and health problems should be there
for the person for support not have full control.
· There should be a certain age where children should have their
control to be able to talk to Health profession but have someone for support if
needed.
· This should depend on the child’s health and abilities.
· No one should be spoken about as if they are not there.
· Adults should let them do as much as what they can for themselves
that includes Health professions, parents, Support workers, carers and etc.
· I think also we need to be working a lot with the PCP Person
Centred Planning.
· More independence should be encouraged as possible for these
people and only supporting them if and when they need it.
What may these things may be?
- Having a home of our own or sharing with whomever we want to share
with.
- Coming off benefits into full time work.
- Going to college or university.
- Going out more in the day and or night when we want to.
What is stopping us doing
what we want to do?
- Family, parents, carers and some support workers.
- The government and their cuts.
People with disabilities, health
problems and the elderly have less choice and control than other people. Not
all vulnerable people have the same independence and they don't all have the
same support either. Society controls different people's lives in different
ways.
How does someone know when to support
and when not to?
Different people with disabilities and
health problems have different disabilities and health problems so they need
their support and independence in different ways. Everyone has weaknesses
and strengths whether they have disabilities, health problems, and elderly or
not. There are some new skills our disabilities and health problems will allow
us to learn but other they won't depend what disabilities and health problems
we have got. Its needs to vary from support to independence by getting the
balance between the two.
Person Centred Care.
The word person - centred means the person themselves, their choice, their control and their life but support should be given when it's asked. Many people tend to think that some people don't ask for help when it is needed, yes for most people its true. Very often the reason for that is mainly when it's comes to today's world a lot of services lacking funding due to the point a lot of people give asking for help and they are left to do without the support. Yet more often than not the odd bit they may often could be on things on what they can manage without help.
The idea of Person - Centred care is to
see that the person get's the care they need to their choice and control and to
balance with the family's thoughts too. A lot vulnerable people have been cared
for wrongly in the past and even been neglected. A lot of vulnerable people and
even their families have lost have lost a lot of trust and faith in services
because they have been badly let down in the past. This could mean hospital's
dentists, doctors, employment services, education services or anywhere.
Here's link about Person - Centred care
in nursing http://www.open.edu/openlearn/body-mind/health/nursing/the-importance-person-centred-approaches-nursing-care
User friendly is about been friendly
towards people with disabilities and health problems. How would you like to be
treated and spoken to? People with disabilities and health problems like to be
helped when it’s needed. Just because people with disabilities and health
problems need help more than others people shouldn’t treat them like babies and
small children. Everyone needs help at some time no one should be wrapped in
cotton wool to a point they can’t live in the big wide world. Why should people
with disabilities and health problems be treated any different to other people
just because we need more help than other people?
History of how people with learning
disabilities and health problems were treated.
In the past in war times, Adolf Hitler came into power in 1933, roughly six years before the war broke out. The German Nazi party passed a law that called for the sterilisation of people with 'diseases' that were thought to be hereditary.
Between October 1939 and August 1941 the Aktion T4 euthanasia programme operated in Nazi Germany. It aimed to rid society of those the Third Reich called 'Useless eaters.' It is estimated that between 70,000 and 100,000 disabled people were killed. Most were large-scale killings poison gas - a technique later used extermination of Jews in 'The Final Solution. This included people with learning disabilities, Mental Health, blind and deaf people.
People with disabilities have been
classed as mental and physical handicap. The reason why people with
disabilities were look upon that way is because no one understood us and we
were a dangerous to society. We were treated very difference to non - disabled
people but Adolf Hitler was against all races. We were very easy to target
mostly by the likes of Adolf Hitler and the Nazis in World War 2.
Hitler finally called an end to the T4 programme following pressure from church and public. However, killings continued until the end of the war, often by lethal injection or starvation.
This was because all disabled people were seen as depending on the care of non - disabled people, which was hard work for the likes of Adolf Hitler, he saw people with disabilities as useless. Hitler didn't only hurt people with disabilities, he had a big problem with race full stop. For eg: he didn't like you if you were a Jew or if you were gay.
These day people with disabilities are feeling less useless and less guilty of how our disabilities affect our lives. There's a lot hard work to do yet. There are still people like Hitler about. We are all human beings whatever our race. We are human whether we have a race or not. Whatever kind of person we are we are there by choice or none at all. How people are in their race shouldn't worry you, there is more to everyone than just race. We all know the world is not perfect but let’s have far less Hitler’s now if not at all.
We would like to think things have moved since then but no. There's a bog concern that people who have their benefits cut get force into work they can't without support by such places like DWP. If you or anyone you know have faced these experiences you are more than welcome to email me on sarajgorman@gmail.com
EXAMPLES OF HOW
LIFE WAS FOR PEOPLE WITH DISABILITIES IN HISTORY.
Today the hospitals
would have been paying a lot out of money for families who have experienced
neglected births. I was born with lack of oxygen to
the brain. This is was what caused me to have autism, epilepsy, dyslexia and may be even dyspraxia, which most things weren't known about. I know I never been badly disabled but I could have done without with what I was born. My Family couldn't claim any more in those day or they didn't know they could. I was born at the Beeches
old Nursing home on the Tettenhall road Wolverhampton; they neglected my Mum when she was having me. It doesn't mean I would have expected any of the money. In those days you had Terry towelling nappies and you were lucky if you had a washing machine, my Mum didn't. My family could have done with the money at that time because I had to wear nappies longer that I should have. It doesn't mean to say that all these unnecessary things have stopped today. We would like to see that families and carers of people with disabilities get more support in everything that what we did.
I know I keep saying that it's about time people with disabilities started training and educating non - disabled people mostly to learn to understand is as human beings. Non - disabled people need to learn that we try very hard to learn from our mistakes. Understanding us would be a big help to create a better future from having to learn from a very dark past now it's the 21st century.
All my family had extra hard work with me due to my disability, support was very little or not at all.
I think it took years to diagnosis my disability, now I don't think even now we are really sure whether I have autism or not. We know I have a disability of some sort for sure. Who knows if we have been told the truth or not? We know for sure that I have epilepsy because I had it in the past and it came back.
As for being hyperactive little did we know that too much sugar and may be even too much salt can cause some people be hyperactive mainly children, even now that we have been told more things, who really knows for sure?
Please drop me an email if you have any views or need any support the kind of subject I have just written about now. My email address is for all subjects to do with disabilities on this website. sarajgorman@gmail.com
neglected births. I was born with lack of oxygen to
the brain. This is was what caused me to have autism, epilepsy, dyslexia and may be even dyspraxia, which most things weren't known about. I know I never been badly disabled but I could have done without with what I was born. My Family couldn't claim any more in those day or they didn't know they could. I was born at the Beeches
old Nursing home on the Tettenhall road Wolverhampton; they neglected my Mum when she was having me. It doesn't mean I would have expected any of the money. In those days you had Terry towelling nappies and you were lucky if you had a washing machine, my Mum didn't. My family could have done with the money at that time because I had to wear nappies longer that I should have. It doesn't mean to say that all these unnecessary things have stopped today. We would like to see that families and carers of people with disabilities get more support in everything that what we did.
I know I keep saying that it's about time people with disabilities started training and educating non - disabled people mostly to learn to understand is as human beings. Non - disabled people need to learn that we try very hard to learn from our mistakes. Understanding us would be a big help to create a better future from having to learn from a very dark past now it's the 21st century.
All my family had extra hard work with me due to my disability, support was very little or not at all.
I think it took years to diagnosis my disability, now I don't think even now we are really sure whether I have autism or not. We know I have a disability of some sort for sure. Who knows if we have been told the truth or not? We know for sure that I have epilepsy because I had it in the past and it came back.
As for being hyperactive little did we know that too much sugar and may be even too much salt can cause some people be hyperactive mainly children, even now that we have been told more things, who really knows for sure?
Please drop me an email if you have any views or need any support the kind of subject I have just written about now. My email address is for all subjects to do with disabilities on this website. sarajgorman@gmail.com
· We are hard work for society.
· We
are a danger to society.
· We
cost society too much.
· We
are to blame for our disabilities and health problems as far as society is
concern.
· We
are made to feel guilty and ashamed to have been born in the first place.
· We
are only human just like you are so how can society make people with
disabilities and disabilities and health problems feel life is worth living?
· No
wonder the rate of Anxiety and Depression is high.
· What
can society learn from the dark past to create a bright future?
· How
much has got better?
· How
much has got worse?
· What’s
good?
· What’s
bad?
· What
isn’t good enough?
History of
learning disability and health problems.
· http://www.mentalhealth.org.uk/content/assets/pdf/publications/starting-today-background-paper-1.pdf
· search.tb.ask.com/search/GGmain.jhtml?searchfor=history%2C+present+and+future+of+learning+disabilities+and+health+problems.&st=tab&ptb=EAC85840-C98E-43C2-BF3C-B3E438262E87&n=781aa443&ind=2015011907&ct=SS&pg=
One straight
answer to one question.
Services need to
let all their staff know of any changes in rules not only for people with
disabilities and health problems but for everyone for example; can you support
to fill my benefit form please, it needs to be posted for Monday? The
answer shouldn't be yes and no off different people someone
should know sure, it should be yes or no.
Communication
website
http://www.specialeducationalneeds.co.uk/makaton.html
Transport
information. Some people have no sense of direction mainly those
people with Dyslexia, Anxiety and Depression. A map that stands out with
different colours would be rather useful for most people whereas others
it could be 123, abc or and bullet points for example.
· Turn
left.
· Turn
right.
· Straight
on.
Some people may
want that format in colours for example.
· Turn
left
· Turn
right
· Straight
on
Person centred planning.
https://www.mencap.org.uk/our-services/personal-support-services/advocacy/empower-me
Today’s health care for people with
learning disabilities and health problems.
Teaching programme
Paper Aeroplane.
Instructions were easy to follow.
For example someone like me with Dyspraxia may
have problems with get the paper straight and equal.
This task is an example of
teaching all kinds of things such as wiring plug, putting and light bulb, they
may have followed your instructions correctly their hands like mine may not be
strong enough for example to be able to connect the wires safe and secure into
the plug.
A duvet on a bed cover might not
be put into the condors tight enough.
A lot of equipment has changed compared
to years ago, kettles now turn off on their own but they never used, it used to
seem as if the kettle was never going to stop boiling.
I was at least fourteen until I made my Mum a
hot cup of coffee.
Microwaves are easier and safer than
cookers for people like me to use but then food doesn't stay hot for
long.
Those who need a lot of support
to cook fresh food can’t always get that support to do so. Now that a lot of
care and support services need to be paid for not everyone has enough on their
benefits to pay for it.
Clear pictures and easy words could be
another easy way for a person to follow instructions to learn do things step by
step but they may need support to do and complete the task. For other people
they may need support to read the instructions but they may do and complete the
task fine so therefore you won’t find everyone has the same strengths and
weakness. http://www.housingcare.org/service/type-12-aids-equipment.aspx
https://osha.europa.eu/en/publications/factsheets/53
http://www.focusondisability.org.uk/links-1.html
esteem?utm_campaign=trendsetters&utm_source=facebook&utm_medium=cpc
Making and getting phone calls.
Mainly when making an important call
you can always get to speak someone right away. Nine times out of ten
you get the answer and the person can talk too fast you. Please leave a
message after the tone that is all well and good but not always when something
is important, which can depend when that person can reply to your message in
the first place. It can work the same with emails and texts. I find they talk
too fast when they say press this number for that and that number for this.
Without discriminating not
many people with disabilities and health problems can understand foreign languages, mainly those of us who have problems with our speech which can make it hard for us to learn foreign languages. This can be very hard if we have make a call to a service and even harder if we
get a call that we don’t except.
Memory problems.
What causes memory
problems?
Dyslexia
· Dyspraxia
· Dimension
· Side effects from most medications
· Epilepsy
How can you
support memory problems?
Accessible
information (Easy ready).
Forms of communication.
· Giving time to listen to your patient.
· Mackinton
· Pecks
· Sign
· Flash cards
· Brail
· Touch
· Body
· Eye pointing
· Tap pack
· IT Communication
· Lip reading
· Face expression happy face, sad face or
and ok face.
· Behavior
· Symbol time table
· Thumps up
· Thumps down
· Live stories and pictures
· Written communication
· Play studies
· ABC boards
· Talking
· Short form of communication
· Health Passport
- Verbal
- Nonverbal
- Visual
- Non-visual
- · Sing-along for
people with Autism
- ·
- · Talking
mats
- · Widget
- · Symbol
world
- · Clear
For All
What
disabilities and health problems would you use those forms of communication
for?
We need to
make sure the patient understands all the information, the information needs to
be accessible.
· Easy Read
· Clear
written/audio information
· No Jargon!
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