Awareness of Stress,worry, panic, Anixety, Epliespy , more and Depression

 Not everyones' case but in most peoples' cases, it is possible for stress, anxiety, worry, panic, epilepsy even depression, and more to link together if things they worry about, etc get' too much to a point they may fear things much to face where they cannot cope to go through with whatever to a point they may not want to be in this world.

It is possible for most of us to worry about something so much for a certain amount of time we may be facing Anxiety then just may cause us to have seizures but not in every one or any situation etc. 

There are many causes of Epilepsy, stress, panic, and even Anxiety for that matter but if it comes to a point where it all happens together, not always the case but in most cases may be serious risks of heart attacks, maybe seizures, etc. https://tidsskriftet.no/en/2018/10/klinisk-oversikt/epilepsy-and-anxiety

It's handy a surprise is possible for Epilepsy, Anxiety, and Depression can link together not necessary for everyone who faces, one, some, all of these disorders. This could make most people are sensitive and more to certain situations compared with most of the general population. Such as worrying about bills etc, things to be filled in for a certain time and need to get support, etc if they need it; emotional situations such as relationships, marriage breaks up, and people who they know. During funding it's not always possible unless they can afford to pay, they need more counseling if they go for it, compared to most other people may and at risk of feeling suicidal, etc possibly.https://www.mind.org.uk/

Life living with Epliespy working round Epliespy and treatment.

I can only go round how my life was when I was facing seizures but I will try to put on this links on how they advise you to live with Epilepsy these days but also some of the old ways maybe still going as well.

How your life could be is to how, mild, major, types, a dose of medication, treatment, etc, and those in your life who may be your employer, teacher, etc for your safety and by law will need to work around that.  

People will need to accept it when you need to see you check GP, have check-ups at the hospital, etc for the sake of your health.

  https://patient.info/brain-nerves/epilepsy-and-seizures/treatments-for-epilepsy

This also, may or may not depend if this is the first time have faced epilepsy, or you have always faced it or if you have been having certain amounts of times without seizures, whether it's days, weeks, months years, etc. 

This may also depend if you are facing other problems as well or not such as disabilities, mental health, and other problem, which can happen any time before birth, during, and after birth. There may be a difference in how others need to support you etc, which could depend on what is facing and when. If it's something that keeps on coming and going, unknown it's going to or come back or not, your rights, support, etc shouldn't change just because something may come and gone, etc because if it's unknown it's beyond your control, and everyone's control as long as you make them aware of it, even though they may not change it but to know your safety and rights, etc are still in consideration and also may depend on how well or not well people who you may be working for, who may be teaching you, etc knows you. They have a responsibility to work around your safety, needs, etc so you can enjoy whatever you enjoy doing as much as possible. This also may depend on what you are doing which therefore you most likely won't have to stop necessary but some changes may or may not need to be made. Even if you do have to stop something may be similar if not the same but safer possibilities may be put in place if not where are but maybe elsewhere.  https://epilepsysociety.org.uk/living-epilepsy/wellbeing/safety-and-risk/risks-epilepsy

https://www.betterhealth.vic.gov.au/health/ConditionsAndTreatments/epilepsy-first-aid-and-safety

https://www.epilepsy.com/living-epilepsy/seizure-first-aid-and-safety/staying-safe

https://www.epilepsy.com/living-epilepsy/seizure-first-aid-and-safety/staying-safe/safety-work

Living with Epliespy 2

 

How medications have been known to affect lives. 

As I said in my last post I was on one medication through my childhood and have been on a very few in different times in my life where the medication affected my life learning, getting around, etc. I and my family thought it was just me and my disabilities until a few years after I came off these medications, which were Pheobarotone and maybe even tegrtrol. I have heard that Pheobartone has been taken off the market but it is listed in an old Epliespy book of mine.

Getting to the point of this post, I have no idea whether or not other people have faced the same or similar situations as me. Whichever no one deserves to have their lives affected by anything, it's enough having them affected by disabilities, mental health, and other problems, that no one can do anything about other than treatment or and support, etc depending on what it may be and the person, their whereabouts, etc.

 Medications it should be possible for professionals to look into because a human being has the right to be to enjoy learning, get about see their friends as independent as possible from say the age of 10 with less support from an adult as possible and know their whereabouts safety, etc. I understand not everything is possible for everyone and I will say things have come quite a way compare to when I was in school and when I left. I will be honest I am out of track with what's there for younger people but I guess could say as many positives for them as possible, please, even those who are special needs, etc cause no one should have to miss out on their career and future. 

It wasn't a huge problem in one way learning what I missed in school during young adulthood but it made it hard for me to be able to get a proper job, now I don't think I will get it because now 51 but  1 never knows, never say. Compared to if I could have achieved a few qualifications in the school, not that would have necessarily made a huge difference but maybe. Despite that, I think I am a successful Visiting Lecture, the voice of disability, mental health, and other problem,  Advocacy skills, and hopefully one day a nonprofessional in Counseling and Mentoring, despite there's very little of it mainly at the moment because of lockdown. That's enough about me, what about you or and those you may support, care for, etc with Epilepsy? 

Everyone knows that Epilepsy can happen to different people at different times. I may be wrong but at least from my experience as understandably everyone who faces Epliespy and seizures hates it. Naturally, I am not alone on the one if I am, just my luck facing what I have faced and that is to my knowledge it is not a straightforward condition probley in some case if or when it keeps coming and going. I understand it is hard for the system to keep up with people's need, support, etc but personally think when the system here's of people facing this it's earlier to keep things the same because it is unknown and no fault of people are facing Epilepsy if their seizures stop and start again and no fault of anyone else. 

Never ban, sack, or turn someone away, etc because they have Epilepsy, learn how to support them to have a good life as possible and keep them safe without also wrapping them in cotton wool and taking them away from enjoying life. Such as a safe enjoyable home, career, social life, etc. https://epilepsysociety.org.uk/work-employment-and-epilepsy

https://www.disability-benefits-help.org/working-ability/epilepsy

https://support.fitforwork.org/app/answers/detail/a_id/286/~/epilepsy-and-work

Safety advise in the home from the NHS. 

At home

Some tips to help you stay safe at home to include:

• use guards on heaters and radiators to stop you from falling directly on to them
• install smoke detectors to let you know that food is burning if you sometimes forget what you're doing or have seizures that cause you to lose awareness
• cover any furniture edges or corners that are sharp or stick out
• have a shower instead of a bath
• do not lock the bathroom door
• place saucepans on the back burners and with the handles turned away from the edge of the cooker

https://www.epilepsy.org.uk/info/safety

https://www.epilepsy.org.uk/info/sports-leisure

• GOV.UK: epilepsy and driving
• Epilepsy Action: driving
• Epilepsy Society: driving regulations for epilepsy
• 
  

https://www.nhs.uk/conditions/pregnancy-and-baby/epilepsy-pregnant/#risks-from-epilepsy-medicines

https://www.nhs.uk/conditions/pregnancy-and-baby/epilepsy-pregnant/

Using contraception

If you do not want to get pregnant, it's important to use a reliable form of contraception.

Ask your doctor about the best type of contraception to use, as some AEDs can affect how certain contraceptives work, including the combined contraceptive pill.

Methods of contraception that are not affected by AEDs include the:

• intrauterine device (IUD)
• intrauterine system (IUS)
• progestogen-only injection

It's also a good idea to use a condom as well.

Speak to a GP, a pharmacist, or a family planning clinic if you need emergency contraception. You may need to have an IUD fitted.

Further information

• Epilepsy Action: contraception and epilepsy
• Epilepsy Society: contraception and epilepsy

More is on the NHS page. https://www.nhs.uk/conditions/epilepsy/living-with/

Living with Epliepy 1

 When facing Epliespy or and having faced Epilepsy, situations, needs, etc should be considered the same at least in my opinion not sure whether or not others agree, maybe some of you will and others won't. This is because if seizures stop after so many years no one knows if they going to come back and how or short they come back for if they do. These peoples' rights, safety and etc need to be considered whether the epilepsy is ongoing in people's lives, on and off once people in their lives know these people are facing seizures or have done in the past cause the unknown is unknown. 

Most people have said to me over the years but I guess others may see it the opposite, once facing seizures even if they have stopped you are still considered as having Epilepsy whether they come back or not. I have been seizure-free for just under 10 years now when I was 43 2013 to 2014 and I am now 51. According to my internet research to my understanding, no one knows what seizures can come and go for years, if and when they return, etc, which is sounding as if we living in the unknown. 

For this post, I have been researching careers and epilepsy, I have as face jobs are concerned here are some suggestions the internet has come up with Animal trainers, mental health counselors, fine artists, library work,  conservation scientists, or personal financial advisers. https://study.com/articles/careers_for_people_with_epilepsy.html

These are jobs for those who want to support and care etc for people with Epilepsy, even disability, mental health, etc.  https://uk.indeed.com/People-With-Epilepsy-jobs

Study and work.

For me and many others my sort of age, slightly older or younger society wasn't very educated on understanding disabilities, mental health, epilepsy, or other problems that could affect people's lives. Therefore you either got by or you didn't, support, etc was very little or not at all if you couldn't understand the world around you straight away. 

As a small child, I was on pheabarotone tablets where people in my life didn't know that was responsible for affecting my life such as learning and knowing my way about, etc.

 Even when I was in my last childhood years and the early teens I still needed to be supported by someone, I couldn't out alone without being at risk of been knocked over by a car, getting lost, etc and I was in my own little world. Therefore I learned nothing in school. My seizures stopped at 12 and I was taken off the medication at 13. 

After a number of years I was waking up to the world, starting to learn but when I left school at 16 I had nothing to show for myself and had no idea what to do. 

I started off in Wales a living riding stables looking after ponies and another animal started to catch up with my studies, which were only, math, English, and stable management. Archived my first certificate grade 1 in stable management which I was over the moon about and did a number more in the next 5 yrs, then I left in 1991 at 21. 

I was on YTS from when I was 19, then it changes to YT when I was 21, I helped out in old people's homes till I was 23, then went back to my birth home Wolverhampton, did a number of English qualifications, work experience Compton hospice, Beacon For The Blind, The Maltans, the library, etc which was helping out in a charity shop, basic office working, filing and folding leaflets, making restants hot drinks. 

By the time I was in my mid to late 30s, I started work for Mencap as a learning disability and mental health awareness trainer plus Advocacy worker, which most of that carried on at One Voice and the Univesity Of Wolverhampton. 

Living With Epliespy

 Even if someone like myself was born with Epilepsy it happened any time in one's lifetime, some people may find themselves like have, having and not had seizures for years. Just because they have stopped having seizures no one knows whether they will face another one or not, therefore for that reason, it shouldn't mean their need, support, etc should change but if the seizure does come back things will only need to come back again, which cost not necessary the people who face them but the system, may families, carers, etc time and money. 

When most people, services, etc found out I have been facing my condition being on and off, it has caused a lot of confusement, which I guess is understandable but also furstraighting. This is a hard one to explain but as much as no one wants seizures and epilepsy but if they stop, don't get me wrong is good news but unknown whether they going to come back or not, in many cases in the eyes of society it tends to change your need and rights depending on if your facing seizures or not. For eg; when I had been having seizures I could have done with a flat with no stairs, which is okay now as I am not facing them no now but unknown if things will stay that way. 

Those of you living with Epilepsy and facing seizures I haven't forgotten what it's like. Those of who are parents, carers, families, etc, anyone who faces Epliespy will say it's not the same in everyone who faces it and it's something that can happen to anyone at any time, unknown whether you are going to get it or not or whether not going to all your life. It's like it has a mind of its own without telling us, I am going to hit you one or no I am not going to hit you, etc. I hate to say it but just being honest it's like it sees it that way, I like you but I don't like you. In some people like me, it's as if it's playing with our minds. I am going to get you now, no I am not now but not telling if I am going to get you again. 

Anyone who faces Epliespy will also know it is a lot about health and safety but not all. With the right treatments and even support depending on the needs etc of those who face it, we can lead equal lives to what we do. Have to be honest in some people's case there may be limits which may be depending on if they face disabilities, mental health, other problems, etc as well. 

Epilepsy is not a health and safety danger or hazard but a health and safety concerned. That doesn't mean people facing the condition need to be isolated or and be behind closed doors away from society. It just means people are in different walks of life need to be trained and qualified to understand the condition, support, even train, qualify, if they work and teach them things,  keep them safe, and know how to look after these people if they face seizures. However' treatment of people with Epilepsy face should decrease the amount seizures they face. For eg' most employers, teachers, etc may find the fact these people will have to face hospital, GP appointments, etc a drawback but need to learn that is better than them not getting checkups, etc, which could be a risk of an increase of seizures. Most of us understand that may be affected on effect money on businesses etc if and when the person with epilepsy has to take time off for treatment, check-ups, etc but even more of risk if those seizures increase. This no fault of the people who are facing the condition, it just happens they don't make this happen. 

Epliespy learning and training.

Although Epilepsy awareness was only one day but then it's not. Does anyone know why?

 Okay, for the past 12 months and we probley will for quite a while even things are picking up a bit slowly with the lockdown. People with Epilepsy even in the lockdown and even more so have to live whether their Epliespy whether there's a lockdown or not. 

Although lucky for myself not having had a seizure five years and other I have still experienced the condition and know no one wants to be wrapped up in cotton wool and those facing the condition like their independences and always need to know others are for them if anything serious happens. 

No one should be ban, sacked, etc from anywhere just because they have Epilepsy. Everyone with Epliespy knows don't me wrong that not everyone is going to know what to do and may need others to help. It is also important as many people as possible know about Epliespy because it can happen to anyone anytime whether they are on treatment or not. Meaning if they are not on treatment, it may be because they may not have been facing seizures very long and only just trying to get checked or like myself had a lot of years with seizures, had their first seizure all of a sudden in however long, in some cases they go and come back for years but yet not everyone faces it that way but most do. Even if you know a small amount of knowledge, it is a start till someone who knows more can step in.  https://www.epilepsy.org.uk/training

Here are some basic tips I admit on the internet because I know very little myself so I have created a little but whoops that is just to help those with basics who don't know, mainly those who work, etc until they can get on courses, etc. I must say I wouldn't mind learning myself with the right support. These tips are useful wherever you come across people facing seizures. 

Do I call for emergency help?

Seizures do not usually require emergency medical attention. Only call 911or whatever the emergency number by you, may be if one or more of these is true. 

If you don't know the emergency number by where are, if there are people around you ask them and even ask for help.

 If there's no one around you if there's anyone you know who near where is call. Sometimes there are no right or wrong options and there are times for whatever reason you may do what is not correct thing due to maybe no one around for eg. 

This not mean this but possibilities of either driving the person to the nearest hospital or going in a taxi etc, if the person comes round at some point.

I will admit and be honest, I may not be correct on everything, which gives you every reason to try get yourself Epliespy training and learning as soon as possible. 

 Here's a link to a list of courses but they are rather pricey so I will try and get a link on some free courses too.   https://www.skillsplatform.org/health/epilepsy-training-courses?gclid=CjwKCAjwr_uCBhAFEiwAX8YJgYby8qrjR6E5370LHba0SEtEl63-nL8Lou1Kie-LKdUXT0LSzwWA3hoCeycQAvD_BwE

https://epilepsysociety.org.uk/epilepsy-training

• The person has never had a seizure before.
• The person has difficulty breathing or waking after the seizure.
• The seizure lasts longer than 5 minutes.
• The person has another seizure soon after the first one.
• The person is hurt during the seizure.
• The seizure happens in water.
• The person has a health condition like diabetes, heart disease, or is pregnant.

Basic first aid for any type of seizure.

 There are many types of seizures. Most seizures end in a few minutes.

These are general steps to help someone who is having any type of seizure:

• Stay with the person until the seizure ends and he or she is fully awake. After it ends, help the person sit in a safe place. Once they are alert and able to communicate, tell them what happened in very simple terms.
• Comfort the person and speak calmly.
• Check to see if the person is wearing a medical bracelet or other emergency information.
• Keep yourself and other people calm.
• Offer to call a taxi or another person to make sure the person gets home safely.

Basic first aid for major seizures.

When most people think of a seizure, they think of a generalized tonic-clonic seizure, also called a grand mal seizure. In this type of seizure, the person may cry out, fall, shake or jerk, and become unaware of what’s going on around them.

Here are things you can do to help someone who is having this type of seizure:

• Ease the person to the floor.
• Turn the person gently onto one side. This will help the person breathe.
• Clear the area around the person of anything hard or sharp. This can prevent injury.
• Put something soft and flat, like a folded jacket, under his or her head.
• Remove eyeglasses.
• Loosen ties or anything around the neck that may make it hard to breathe.
• Time the seizure. Call 911 if the seizure lasts longer than 5 minutes.

Stop! Do NOT

Knowing what NOT to do is important for keeping a person safe during or after a seizure.

Never do any of the following things

• Do not hold the person down or try to stop his or her movements.
• Do not put anything in the person’s mouth. This can injure teeth or the jaw. A person having a seizure cannot swallow his or her tongue.
• Do not try to give mouth-to-mouth breaths (like CPR). People usually start breathing again on their own after a seizure.
• Do not offer the person water or food until he or she is fully alert.

First Aid training links. 

https://www.redcross.org/get-help/how-to-prepare-for-emergencies/mobile-apps.html

https://www.epilepsy.com/learn/seizure-first-aid-and-safety/tailoring-first-aid-plans

https://www.mentalhealthfirstaid.org/take-a-course/find-a-course/

More to know about Epilepsy.

https://www.cdc.gov/epilepsy/about/types-of-seizures.htm

https://www.cdc.gov/epilepsy/managing-epilepsy/index.htm

https://www.cdc.gov/epilepsy/about/fast-facts.htm

Training for professionals

https://www.cdc.gov/epilepsy/groups/professionals.htm#school

https://www.cdc.gov/epilepsy/groups/professionals.htm#responders

https://www.cdc.gov/epilepsy/groups/professionals.htm#caregivers

https://www.cdc.gov/epilepsy/groups/professionals.htm#childcare

https://www.cdc.gov/epilepsy/groups/professionals.htm

Epliepsy advice about check ups.

 From my experience, I am only aware of ECGs. We all know Epliespy happen all time yet there people who don't face it all ever in their lives. If you have concerns that you or someone or people you know may be facing seizures. I would advise you to get checked or and advise others to so. However, I understand with Covid the NHS is very limited which is very concerning mainly with Epliespy so it may be advisable if it's or and advise those who may be facing seizure to make a health professional aware, even though appointments may be limited, etc.

 No one can force anyone to do what they don't want but not always the case, Epilepsy can be a huge life risk if not checked or even treated if there's anything to be concerned about but you never know there you or and whoever may be in the clear. 

I know this makes no sense but there have been cases, it has happened to me where I have had ECGs and nothing has shown yet I have been facing seizures but if not checked it could be a huge concern. 

Here are some links for treatment whether or people, someone knows is facing Epilesy already or you think you, others could. Naturally when it's yet checked one won't be having treatment but this could be what could be what's faced with it is etc. Those who are facing it are naturally likely to know so if needs they may be able to tell you what to expect, someone else or others.  https://www.nhs.uk/conditions/epilepsy/treatment/