Sunday 14 February 2016

Teaching from experience.

How Service Users and Carers would like to be treated.

We don’t want to be felt sorry for but we would like a sense of empathy.
We would to be able get the help we need and someone to know the right places for us to go without going one place to another. It also cost lot money us to ring different places up. Emails may be free to send but we have a lot of other things to do too. It’s as if we are not listened to or taken seriously.
Information needs to be easier for a lot people to read and understand.
For so many years now so many people have been let down by so many services to a point they lose faith in asking helping at all. Making do without the help, therefore for people nothing gets done at all. We understand to some point people need to learn to do their selves but there are some things many people have tried for a long time and just can’t. Therefore my point is that services need to encourage people to use their services more.
What a lot of us sense is that a lot of people work in these services don’t enjoy their jobs, which make them very helpful which doesn’t make people feel good about asking for their help. Therefore there’s no smile or eye contact. 

Lack of Support through funding and worries about the future.


It seems now that people need the support the most the money isn’t there to fund services. Everyone’s cases and needs are different because some people get more support with friends and family than others. Some peoples’ disabilities and health problems are worse than others. More and more lives are in risk due to the support that’s lacked through funded. Not a lot of people can affront their support due to benefits cuts.




Ok lots of people are willing to work but many need support to find work and be supported in the placements as well. If support for runs out there’s risks of people on benefits while having to look for work again.

Advocacy.
Service Users and Carers look out for one another. We are one another’s voice in need. We have faced services. We have authority over own experiences. We understand what happens and why but services don’t understand or they don’t want to. Have authority to speak the truth. We have the rights to know why we aren’t getting the help need. People with disabilities and health problems should have as much rights to access friendships and relationships as much as other people.
·       Speak up and stand up for ones’ self or and others.
·       Advocacy is also to empower one’s self or and others.
·       Action to put words into action, do the job what’s spoken about.
·       Coping with change.
·       Achievement result.
·       Frustration
·       Confidence
·       Personal development
·       Positive
·       Images
·       Individual
·        Attitudes from people

·       Organisations

Case studies that may come in useful for Student nurses.

Health study cases for LD week.
Sorry this is an old report but I hope this report will come in useful, mainly for those who haven't seen it before. Updated 13.2.2013
Study case 1. Mr Jones is eighteen years old.
He was send to a mental impairment service from the Children team nine months prior to his eighteenth birthday.
At the time he was living in a supported flat with 24 hour 1 to 1 support from a private run domiciliary care service, where he had resided for about one year.
He was diagnosed Autism and depression, for which he was prescribed medication by the children's psychiatrist.
At the time he was told that he had severely behaviour problems, he had attacked staff several times a week.

This caused a high level of staff sickness to injury or stress.

He has had threaded members of the public.

He often went out to meet young women, which he had relationships with.
He was well known to the police service, which had been called out many times because of his violence behavior towards staff.

He was in court many times for assault and threatening behaviour and been detained in young offenders institution twice.

Shortly after his referral, he was again detained in a prison which was 150 miles away from the service.

The mental impairment service attended two reviews at the prison and traveled to see him during his period of detention.
The remain prior to his eighteenth birthday was to gather information and liaise with children's' services.

It was clear that due to his level of learning disability he was not coping well in prison.

The service advised him that psychiatric assessment was done during his time of detention, with a view to finding him a hospital near his home area, and planned for a local psychiatrist to travel to the prison and carry out the assessment.

However, before he could be moved, his time of detention ended and he was released back to his old address.

He was placed on a higher level of 24 hour care with two or three staff at all times.
He has been detained on a low secure unit many times in order to treat episode of psychosis.

A few months later, the housing and support provider felt after many attacks, they couldn't give support any longer to Mr Jones due to his behavior.

He was evicted from the property. An emergency referral was then made to an alternative care provider which was based about 60 miles away from his home.



He was moved to another supported flat with 24 hour support from two staff.

A mouth of residing in this placement he again turned up in court following previous assaults and was remanded in prison. At this point he turned eighteen.
He was officially moved to the mental impairment service on the day of his 18th birthday.
Shortly after this, a move to this a move to a low private secure therapeutic facility was planned under section 37 of Mental Health Act. The unit is 156 miles away from Mr Jones’s home.

People with LD and Mental Health problems can be misunderstood but it doesn't that everything is down to LD and Mental Health.

Some people may be unaware of what they could be saying or and doing.
There are all different kinds’ behaviour problems.


For example; I understand that crime can be a serious thing, I feel for people when they lose the people they love.

No one is saying that people with LD should be treated any different because of their LD but there needs to be awareness of balance if it comes to a case of a person with LD who hasn't been aware of what they may have done until they have told in a prison but at the same time we must understand the feeling of the victims loved ones.
The person with LD may be very angry with themselves to a point they could take they own life because they wouldn't be able to stand a life time in prison.

I am not saying all people with LD don't know what they are doing but for the ones don't wouldn't do such crimes if it hadn't of been for their problems.

Some causes could be done to LD, Mental problems or and the side effects of most medications. Health staffs need to look into these things so these people don't put themselves through these things.

Case 2 com pair Mr Jones’s case with mine as a child.

How do you think my life would have ended up now if I was still on those dangerous tablets? Do you think I would have ended up like Mr Jones or not?

Possible side effects from medications.


 Heavy medication can be dangerous for children. A lot of heavy medications can cause behaviour problems. The Medications, disabilities and health problems don't excuse behaviour problems but they don't hell them. Some behaviour problems cause crime but others don't, this can vary from person to person.
Some people find it hard to pay attention in the daytime and sleep at night. Medication can make some people over tried to a point where some people don't sleep at all and others sleep too long. Some people can be very sleepy and dreamy yet they can't sleep even if they get the chance to. This is hyper-actively.
Some people start to get better when they come off medications but other get worse.
Some people can get moody or and have tempers for no reason through medication. This can be common in children as well as teenagers and adults. 
Some people can get angrily if they can't manage to achieve the skills they want to achieve.
For eg; tying shoe laces.
Most people feel alone thinking everyone is cleverer better than them.
Some people feel useless. The worlds seemed too big for them
with some medication some people are unaware of the world around them.
My questions are to you, there's no right or wrong answers, and I am just interested what you think.

Please send me an email on 
sarajgorman@gmail.com.
Back in roughly the late 60s to early 70s doctors put babies on Phenobarbital (phenobarbitone) for Epilepsy. Most babies were taking 3 to 500mgs one tablet three times a day, that’s how dangerous the medication was for a child or any human being any age.
The purpose of Phenobarbitone tablets were to help the soldiers sleep in the 1st or and 2nd world war.
Research about Phenobarbitone on the internet!

If you research this please send an email me to let me know what you have found out please me know if you want my students or one of my Facebook group member both even.

Mr Smith's case.
Case three. Mr Smith is twenty - six years old West Indian man with mild LD and psychotic disorder for which he receives prescribed medication.
He has a long history of petty offences for which he has been arrested and in court many times.
These include burglary, theft and minor drug offences.
He had spent five years on offender register due to previous sex offenders against a girl under age sixteen.

Mr Smith resides in the area he has moved to different rented places over the years.
He often fails to keep appointments and very guarded about his whereabouts, making it hard to engage effectively with him.
He finds it hard to help himself and many of his placements have failed. His currently saying with family and is soon to be evicted.
It is known that Mr Smith does not adhere voluntary to his medication regime.
Mr Smith is very hard to house due to his history of unstable tenancies, and his offending behaviour.
He had just been arrested for burglary and his court case has been put on hold for two mouths.
There has been an on-going issue with the police as he and his family feel that his LD is not taken into account by police or professions with the criminal justice system.
He has taken custody many times with no request for an appropriate adult, or any support from health or social services.

Why do you think Mr Smith committed the crimes he had done?
Do you think by the sounds of cases he meant to commit these crimes or not?
Make notes on the balance of the feelings of the victims and Mr Smith’s feelings in case of if he didn't know what he was doing. How do you think he felt when he became aware?
In the case that he may have meant to commit these crimes what do you think should happen to him because of his LD?

What should to happen to him if he didn't know what he was doing?
What do you think caused it he didn't mean to do? LD, Mental Health problems or even the medication he's taking.
What should to happen to him if he didn't know what he was doing?

What do you think caused it he didn't mean to do? LD, Mental Health problems or even the medication he's taking.


Do you think he may be misunderstood? Without excuses there may be all kinds of possibilities but we need to understand the feelings of the victims, families, lovers and friends.

Please email if you want if you answer to try to answer these questions.

People with learning disabilities and Health problems have to cope with Stress too, which makes people more ill through worry.


Stress is one of the worse killers today, there seems to be a lot of stress today for everyone over one thing or another.


Many people turn to things bad for their health due to stress for example; smoking. It can be hard for a lot of people to accept things that they don't want to live with as it is. Bad news is bad enough as it is without it been confusing and stressful.
If we lose something or someone in our live we don't want to lose, whether we like it or not it happens. It's bad enough for people without LD but the stress can make people with LD more ill. Another example is relationship break ups, family break ups and etc.


I am not saying that people without disabilities don't suffer their problems but people with disabilities have our own stresses without anything on our minds, that's own learning disabilities and Health problems things on our minds on top of the problems all people have, can make life even harder to cope with.

We don't expect any magic wands but we need more understanding and support to cope with our lives. Thank you.

Sexual Health.Back in 1991, my favorite singer Freddie Mercury from Queen died of a Sexual disease called Aids.
I know he didn't have learning disabilities but there's still isn't enough awareness about Sexual diseases in people with learning disabilities.

I am sure Freddie would have liked people with LD and Health problems to get a lot of support for our Sexual Health as much as people without.

Whether we have LD or not we all have feelings.

Freddie was just as ill as people with LD would be.

There again what people need to understand due to our life Health problems. Other illnesses everyone can have, people with LD can be twice as ill as people without LD. It could make us die quicker because of our LD and the Health problems we may have already.
There needs to be more education on Sexual health that's accessible in schools and colleges.

It can be hard enough teaching young people as it is why education on health is important but people with learning disabilities are slower learners so many of us may need more support to learn.

For example; some people may not understand why we are advised to use condoms and may even have problems putting them on, mainly if we have problems with our hands. In my case with problems griping, without been personal I am lucky that I have had partners who knew how to put them on.

There still needs to be more education on choices, pregnancy, conception, support and etc.

In March 2009, Jade Goody died of cervical cancer; this is just an example of many young people who have died of cancer.

I want to raise awareness of cervical cancer.

We all know its right to have Smears to get ourselves checked out.
Many women could be scared of having Swears if they have suffered rape and Sexual abuse at any time during our lives. This can have the same big effects on our lives as much females without LD.
May be counselling should be advised to females if they fear swears due to the bad experiences we may have had. Most of us may feel as if we can't go through smears so there needs be support for us to cope with our fears.
Information should be accessible for all females’ not just females with learning disabilities mainly when we have been through rape and Sexual abuse at any time during our lives, this can put a big effect on any female's life, body and mind. We understand males have suffered sexual abuse and rape as well, which we must raise awareness of these kind of things for males with and without LD.
There's still not enough awareness of people with learning disabilities who have cancer.

I had cancer of the throat at the age of 23, even though I was very lucky it didn't spread to any other part of my body but even though the treatment knocked me about I was lucky to get better. Here's a person LD who didn't better from cancer but could if Health staff looked after better. I don't think they looked after her at all.

Mencap wrote the Death Indifference report back in 2007. Someone with LD died of Cancer because she found it hard to communicate with the doctors and nurses in the hospital, she found hard to responded to the treatment so the hospital reported. https://www.mencap.org.uk/sites/default/files/documents/2008-03/DBIreport_easyread.pdf

https://www.mencap.org.uk/sites/default/files/documents/Death%20by%20Indifference%20-%2074%20Deaths%20and%20counting.pdf
http://www.theguardian.com/society/2015/apr/25/far-more-nhs-contracts-going-to-private-firms-than-ministers-admit-privatisation

Here's a big worry about the benefit cuts causing people with disabilities and health problems to be homeless. Benefit money isn't enough for people with disabilities and health problems to buy healthy food. Many people need more support to budget their money, which is very hard for them when the government have cut back a lot on Social Care.

 Health staffs aren't trained to treat people with disabilities and health problems. Stress is a killer for all people but Mental Health and disabilities are stress on its own for eg; people who suffer from Anxiety and depression, Panic Attacks and or even Epilepsy. This is an even bigger danger of making people even ill than when we are.
A lot of people with disabilities and health problems want to work but health issues should be work on before supporting people to find employment.  Otherwise this could cause people with disabilities and health problems to be a health and safety hazards in the work placements as far as employers are curtained. Therefore people need the right support. One of the ways of avoiding health and safety hazards is making sure people have had to correct diagnoses to their disabilities and health problems and to sure they are on the right medications and the right.

Most people with disabilities and health problems have said that the Social don't support them to look for work or they find them jobs that aren't in their ability without support.

A lot of people will find the appeals and courts too stressful without the right support, not everyone has family support. For even those who get support there's only so much support that can be given.
Most people with disabilities and health problems who have elderly members of their families can start to find it hard to look after them anymore therefore they will worry about what is going to happen with their family members who have disabilities and health problems. Updated October 26th 2012



In this report I want to raise awareness of the cuts in support for people who need it most.
 This means benefits, social care, health, education, employment and etc. The British government seem to be getting tighter on money. This is affecting everything and everybody but mostly the people who need it most. People who need support to look after themselves. Not everyone has family support but even a lot of people that do; their families have other things to do in their lives. What about those people who are getting too old to look after their family members and themselves anymore? What help is out there for them when their family member can't look after themselves.  Everyone has different needs. Some people need more support than others and this should be accepted. People need support running their home and other need support in personal care.

As for the people who find it hard to make them really understood, we mustn't think that they have never got thoughts even though we may never know about those thoughts. Simple thoughts like for eg; Does that cake taste nice? You may be able to tell by a sad or happy face or even thumbs up or thumbs down. Being homeless is not nice for anyone but people who need more care or and support would find it even harder living on the streets. The way the country is it is hard to think positive about the future mainly for people who need care or and support most. The benefit cuts are a big worry for people with disabilities and health problems. If the cases get any worse there are dangers of people being homeless and hungry. Benefit money isn't enough for people to eat healthily.

The government has cut back on Social Care. Not everyone has family support and not everyone gets all the support they need because people have other lives.

The stress of the cuts affect people peoples' lives emotionally mainly people with Mental Health problems. For eg; Anxiety and Depression, which can make people worry more than they should. This can make it hard for people to cope with their appeals and in courts so they need plenty of the right support.


This is why health problems need to be worked on first before people look for or and go back to work. There may be a lot of peoples' disabilities and health problems diagnosed wrongly and many may be put on the wrong medications. Many people have said that the Social having been nagging people to find work but the Social are not willing to support them. This is where it causes a lack of communication and understanding so it makes out that people aren't willing to look for work when they are. It's just a good excuse for the Social to take peoples' money off them no matter what.

People with disabilities, health problems and the elderly don't receive the best health care because we don't find it very easy to make ourselves understood. This can cause confusion for eg; having the same health problem but been told different information off different GPs. This can cause people to be put on the wrong medication, which is dangerous.  Cutting back on the benefits and Social care is the biggest problem for a lot of people. No person with disabilities and health problems are saying they don't want to work but health comes first. If our disabilities, health problems and the right medication aren't aware of then the government must understand that we are not safe to go to or back to work even though we would love to.

 I’m an Awareness trainer I am writing this report to raise awareness of how tight this country and it's hard to see that people who need most are going to live through this.

Maybe there is a positive but hard to see. This could be happening to a lot of countries not just Britain. I even remember even hearing the saying as a child. The rich are getting richer and the poor are getting poorer. I don't dislike the rich but it could be true and never change. Winterbourne View Hospital. Now I am raising awareness of abuse.
 When your family member is in care of and supports of others you except your family to be happy and safe. This is very often not always the case. Mencap have come across some shocking cases of abuse in Winterbourne View hospital, where patients with disabilities were staying or and living. I have no idea of the age group of these victims but however old this shouldn't be happening. If you would like to find out more about the cases Winterbourne View Hospital here's the Mencap WWW.mencap.org.uk I am very disappointed that such crime still happen when they are out of care from families. All families/parents need a break but they want their family members to be safe wherever they are. There should have been CIBs or and child protection years ago. Are your patients been rightly looked after in a care homes whether they are children, teenagers or the elderly? Is your child's boarding school safe? Is anywhere safe?  Do you trust the management and staff to take care of the people who you love and care for?
http://m.independent.ie/opinion/editorial/why-should-disabled-suffer-lesser-care-31112792.html
ahttps://justice4thomas.wordpress.com/2015/03/12/abuse-in-care/
http://www.homefromhomecare.com/?gclid=CPTB17GwqMQCFWsCwwodNIYA_A
http://www.tommorrowstudy.com/?EBlastID=18&utm_source=GoogleSearch&utm_medium=Internet&utm_term=UKvendor&utm_campaign=Internet&gclid=CP7emuOwqMQCFSOWtAodE28Avw
http://carepromise.co.uk/?gclid=CMql3P-wqMQCFSOy2wodSWUAYw
https://www.facebook.com/photo.php?fbid=10204809745978128&set=a.3487445059504.2149667.1072751260&type=1
http://www.mirror.co.uk/news/uk-news/bedroom-tax-disabled-dad-eviction-5380074?ICID=FB_mirror_main

http://dpac.uk.net/2015/03/the-vilification-of-disabled-people-by-the-daily-mail/
http://www.mirror.co.uk/news/uk-news/iain-duncan-smiths-benefits-cap-5361269#ICID=sharebar_twitter
https://www.learningdisabilitytoday.co.uk/tribunal-encourages-government-to-trial-changes-to-fit-for-work-benefits-test.aspx



                   http://www.benefitsandwork.co.uk/personal-independence-payment-pip/pip-points-system
http://www.advicenow.org.uk/advicenow-guides/problems-with-benefits/turned-down-for-dla-aa-pip-think-youre-not-getting-enough/how-dla-and-aa-work-html,637,FP.html
http://www.rnib.org.uk/information-everyday-living-benefits-and-concessions-benefits-people-working-age/personal
http://www.sense.org.uk/content/pip-closer-look
http://www.disabilitynewsservice.com/dwp-threatened-to-dock-terminally-ill-womans-benefits-if-she-paid-for-her-own-funeral/
http://labourlist.org/2015/03/labour-demand-explanation-for-tories-proposed-disability-cuts/
How these people have got through for four year is beyond me. Labour really need to get back in because one of the reasons are that deaths of vulnerable people are rising while David Cameron is still in power, good luck to Ed Miliband, I hope he gets through the sake of Britain. http://rt.com/uk/244673-homeless-london-increased-figres/
http://blacktrianglecampaign.org/2012/10/04/10600-sick-disabled-people-died-last-year-within-six-weeks-of-their-claim-ending/
http://www.disabledgo
.com/blog/2015/03/more-than-100-a-week-losing-their-motability-vehicles-thanks-to-pip/
http://www.mentalhealth.org.uk/our-work/research/indirect-payments/

Sorry I haven't made myself completely clear. Last year 10'600 people with disabilities and health problems died due to the benefit cuts, Health professions need to be aware of this.
This is why vulnerable people are having to cope with the stress of been on benefits and why the government is replacing the name of benefit so people have go through filling forms again Not only that, this is why so many people are getting misunderstood for someone they are not. For example many people who have had their benefits
 cut and many have died.

 Now the government need to work to see that the people who are cheating the system are getting punished not those who are in need. This shouldn't stop the rights of vulnerable people having a career; we just need the right support.

http://www.expressandstar.com/news/local-news/2015/03/24/council-to-befriend-benefit-cheats-on-facebook/
http://t.co/DbONX9AH4R
http://www.disabledgo.com/blog/2015/03/mps-want-new-benefit-deaths-watchdog/#at_pco=smlwn-1.0&at_si=551845402c41a0ed&at_ab=per-13&at_pos=0&at_tot=1
http://www.mirror.co.uk/news/uk-news/man-brain-damage-uncontrolled-epilepsy-4305508
The lives of people with disabilities and health problems can be affected by this.
 If this is still going on for people with Health problems then Health staffs need to work harder to look into whether their medication is affecting their lives or not. 

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