Friday, 30 April 2021

Try to help yourself and eachother

 Now lockdown rules have been lifting but we are not completing out the woods yet. Just a bit of advice, still keep track, find out what you can and cannot do. https://www.gov.uk/government/publications/covid-19-response-spring-2021/covid-19-response-spring-2021-summary  https://www.scie.org.uk/care-providers/coronavirus-covid-19/learning-disabilities-autism/carers-family https://www.mencap.org.uk/sites/default/files/2021-03/29%20mar%20summary.pdf

https://www.supportline.org.uk/problems/mental-health/

Trying to help yourself and each other with advice.

Don't get me wrong, Mental health services will be still here to help even as lockdown eases more and no one is saying it hasn't been a hard time but it has but try to help yourself as much as possible and others know you're there for them if they want your support.

It's understandable that you may not want to tell everyone or only certain people etc about things, but only do and don't do what's comfortable to you.

Let someone know you are there for them but do not force them to tell you things they may not want to tell. 

Try to do things you enjoy what's open to you, it may be arts, crafts, hobbies, interest, careers, etc.

Most pubs with beer gardens are open, if you're unsure how this works, maybe call the pub up, find out if you can meet friends, etc, However' it is understandable if like me you may prefer to wait until you can drink, etc inside the pub, with the weather touch and go at moment but if you wish to check things out if you're not sure. 




Remember yourself

 Just remember I am no professional but a person who has faced counseling, therapy, etc in my own past. At the end of the day, we are all human and we all have feelings, thoughts, etc, even the people who help us. Again like I said in the last post, no one forced to do what they don't want. 

'However' as you know last and this year hasn't been easy for anyone due to the covid lockdown and even before then people were struggling with mental health and the cost of funding mental health was high then and higher now. All the same, whatever we do and don't mental health services are needed not only for those who counselors and therapists support but for themselves too and other professionals etc. In a lot of past posts, I have said about concerns about loses and changes to businesses and jobs, but mental health services are the places we cannot afford to have or lose.

 Lockdown has caused the work for mental health support to increasing I am guessing to the point those who help us have no time to think about themselves but they are probley not the only ones, doctors, nurses, and many more not just even in the health field. Depending on the work you do I guess it goes one way or the other, big workloads or nothing at all. All the same, this post benefits everyone, no matter, who you are, what you do and don't, whether you have disabilities, mental health, or any other problems or not.

http://hrnews.co.uk/mental-health-related-workplace-absenteeism-costs-soared-to-14bn-in-2020/

https://www.health.org.uk/publications/long-reads/spending-review-2020

 Trust me, I know nothing whatsoever about Mindfulness but try to only think about what is happening now, not tomorrow, yesterday, or any other day. 

Forus on your thoughts, feelings, and emotions today. 


Thursday, 29 April 2021

Living with and without disabilities, mental health and other problems part 2

Spend some time focusing on yourself! How are you feeling about and in yourself?

Mental health and mental - ill-health is nothing to be ashamed of.

Whoever you are, whatever you do etc, you matter.

It is okay to not be okay, cause it is not okay to not be okay but it is okay to say your not okay.

No one needs to be alone unless they choose to. 

No one is forced to talk and force not to talk.

Help is around for those who want.

What helps one person doesn't help another. 

Whoever you are, whatever you do and don't do, you and your rights matter, help and support are there if or and when you chose whether you help or and get help from others. https://www.turning-point.co.uk/services/mental-health.html

https://www.rethink.org/aboutus/what-we-do/advice-and-information-service/get-help-now/

Those of you studying, working, etc in the disability, mental health, and other problems field, whether or not you do face disabilities, mental health, and other problems, this is just a bit of advice no one is forced to do what they don't want to do, but this may be something that may help your career if do. Anyone can try this if you wish to. 

You don't have to tell anyone anything unless you want to, try and spend some time thinking about you and asking yourself how you are feeling and even how life has been for you, before from the lockdown to now, etc or and whatever is or else on your mind. May even writing down, whether it's on a piece of paper, note pad, typing it, diary, etc, your choice whether you keep it, show anyone or not. 

Remember you matter as well as the people you are helping, empowering and supporting, etc.

Like I have said on many posts before no one is forced to talk or not to talk.

Try to be honest with yourself, remember that you matter, mainly more if you spend a lot of time helping others, mainly if you a counselor, therapist, etc. Feel free if you wish to try this whoever you are, whatever you do and don't etc. https://www.nhs.uk/mental-health/nhs-voluntary-charity-services/charity-and-voluntary-services/get-help-from-mental-health-helplines/

https://www.nhs.uk/mental-health/nhs-voluntary-charity-services/nhs-services/how-to-access-mental-health-service

Mental health support services. 

https://www.mind.org.uk/information-support/guides-to-support-and-services/seeking-help-for-a-mental-health-problem/where-to-start/

https://www.rethink.org/aboutus/what-we-do/advice-and-information-service/get-help-now/

https://www.centreformentalhealth.org.uk/helplines-and-crisis-contacts




Lockdown, disabilities, mental health and other problems part 1

 How has the lockdown affected people with disabilities, mental health other problems? Really probably no more different to other people other than needing that bit more support what other people would. Even then different people need different types of support and different amounts.  During the lockdown home and personal support in different ways has been the main support. For me personally, which is no one different to a lot of people I guess, changes to personal and family support. For me, only slight changes to be fair as my Mum lives out of the country and I have been able to get to her or her to me but we have kept in touch online and my Aunt lives an hour away from me and her friend does things in the flat cannot do once a month. I back to going to town to shop now lockdown is lifting whereas before Mum was ordering shopping online. 

Don't mean to brag if I sound as I am but just been honest to say that I have lucky in a sense having access to the internet but all the same without my workplace and different places I used to go etc, it has been the same things every day and night, even though it is starting to slowly get a little better now. 

Not sure about anyone else even though there have been reasons, I have found most of the rules have changed too quick or and I just didn't really understand them, which is why the only time really I went out the door was to go to the corner shop whereas now I am trying to get my self out flat once or twice a week even if it's only uptown. 

Just to say this post isn't only about how lockdown has affected lives for people with disabilities, mental health, and other problems but everyone, which I know is hard for everyone to know but we know even though we may not know what. That there may be risks to job losses, businesses, being distanced away from friends, family, etc. 

Google has said that many children and young people have felt lonely and bored, without face-to-face contact not able to see family and friends, etc. This is likely to have caused the behavior problems etc, even though there is the internet etc, parents are likely to worry about the safety, etc, even more so for children and young people who face disabilities, mental health, and or, other problems. https://www.mentalhealth.org.uk/publications/impacts-lockdown-mental-health-children-and-young-people

Have, to be honest, I have a confession to make I should have said this a lot sooner sorry. Mental health can hit different people from different walks of life those with and without disabilities, mental health, and other problems. No one is forced to say anything and no one is forced to not say anything completely your choice. All the same, remember no one has to be alone. Even if you not writing comments on this website, which I don't accept unless you choose to, remember if needs be for those who feel they need it, there is help out there, even though it's not promised it's helpful for most people but it may be helpful for some of you. No one is forced to do what they don't want but for those who are struggling etc, you don't have to feel and be alone. 

I understand what it is like to have nothing or too much going on in our lives and with how lockdown has been and to a point still is, still, not a lot is done face to face. I understand that to some but most people and I are one of you with most things, which doing things online can be a challenge such as courses, shopping, etc. https://www.mind.org.uk/information-support/coronavirus/student-mental-health-during-coronavirus/  https://youngminds.org.uk/about-us/reports/coronavirus-impact-on-young-people-with-mental-health-needs/

Despite me writing these lectures on this website doesn't mean I don't have concerns about how life is for you and has been for through the lockdown before, during, and now. Though out the lockdown no really has had no choice but to do most things online, which doesn't seem to be a problem as such but a challenge without support, which is hard when you can't a lot of face to face, although some things maybe share my screen etc for example it may not help everyone. We would all crack if we did nothing for a long period of time but I guess to have loaded with not a lot of possible support. However' whether it's your work, college, etc, how much can your college, university, workplace, etc can give you online? I understand it may not be a challenge everyone is faces but probley most. I know the feeling from having been special needs student before lockdown, some courses I have had support, others not, and others not enough, and trying to get done what needs to be done correctly on time is a challenge. Even more so in lockdown, it can be hard to remember you have support behind you even if you have because at home there's just you and your device, etc. https://freshstudentliving.co.uk/2020/04/01/university-student-mental-health-uk/


Wednesday, 28 April 2021

Lockdown, learning disability, mental health and other problems

 I understand each and every one of us don't need to remind about the lockdown where everyones' life has changed one way or another on the whole in different ways. Hate to bring in negative but we know that the last thirteen months and over, we know it's something we cannot avoid whoever we are and whatever our lives were and are not. I will admit for most of us, it has its positive too but as a whole even for those who haven't lost jobs, businesses, etc, there still may change in negative ways compare to how things were before lockdown, I am not stating the fact there may be some positives for some people too. 

All this is a challenge for everyone to what we have been used to before. It's not only job and business losses but having been socially distant from friends, family, even children, parents, partners, etc, which is concerns to mental health on its own but if you have disabilities, mental health, other problems, even if you help and support off others haven't gone, there are changes to it than what it was before. We know that there are safety concerns with the internet for everyone and even so with vunable people but the advantage is if you know vunable people, if we are honest it the internet make it easy to contact them to see if they are okay. However not everyone is due to safety and some people need some support to use IT and the interest which is not easy when you are limited from supporting people facing, even though in some things there are other ways like sharing your screen for example. 

Even though lockdown rules are starting to relaxing, we still not out of the woods yet like most work placements, etc are not open.

The lockdown I guess has for sure has been a strain on parents, families with children, etc, with schools open and closed, having to home school or and having to work from home or and study themselves, etc. This can be a huge challenge whether you have children with disabilities etc or not. This is because they have been socially distanced from friends etc, there have been no other way for them other than the internet, which can be a good and a bad thing, mainly bad if they come across the people they don't, etc and risks of bullying, etc. 

Just to give an introduction to my life through the lockdown. Not bragging but will admit being rather lucky compared to most although I must say I miss going to the University though they didn't have anything for me very often, which to the last 13 months or so nothing at all. Despite that, I have just been doing nothing like writing posts, on here online workshops, etc. All the same missing people I socialized even worked with etc.

 I will say it was only the first month of the lockdown my Aunty's friend who cleans wasn't allowed to work, this is things I cannot do like change my bed, lightbulbs, etc if needed. If I am honest due to my Autism when the pubs closed when I could go to the university, etc that took a bit of getting used to but I accept it now even though I will be glad to get it back again.

 I have my second vaccine next month so hopefully, life will start to move forward a bit but I understand it is not the same for everyone. I don't think things will be the same again for everyone but I don't think we stay the same forever. 

My concern through the lockdown is if most people didn't face mental health before lockdown, they may be facing during and when life things do start to move forward in concerns of jobs, businesses, etc and even changes in support, etc for careers for people with disabilities, mental health and other problems too. Through the time I was working for Mencap we came across projects where different services etc were facing cutbacks. I even had to ask questions to restaurants in a care home that was closing down, how they were feeling about the home closing and how it was going to change their lives etc, which these examples could be risks in the lockdown too. Back then we were having services like outreach closing by us, which had to find out from people who used them how they felt about the changes. 


Tuesday, 27 April 2021

Learning how support disabilities, mental health and other problems

 People who face disabilities, mental health, and other problems hate depending on others, I do anyway and sadly there are times we no choice in the matter to do so. However, there are support aids, etc but even those who get those can't get them to every area of their life they need them for. Those who support them can only support so much too. This could go from easy read accessible information to say tools to help someone to open bottles jars etc. 

Just too pretty much sorry to say go over some stuff we have gone through on past post but what I haven't really said how we support them. That pretty much depends on the people you are supporting. The last thing you want is to work on hard on something that you think is going to be accessible for people and find out, doesn't work for them. As a teacher, tutor for example you want to know they are understanding and enjoying the learning. The answer to that is finding out from the person themselves, although with some people due to their problems they may struggle to tell you or tell in a way you understand. However, I understand that this isn't always possible but to try and ask those who spend a lot of time with them may know what they do and don't struggle with and how you can make life easy for them. This could be such as parents, families, carers, even support, social workers, and even professionals. However' I know you can only go along with whatever your workplace allows you to due to funding etc. 

In the last post, I went on about people facing such problems as Processing Deficits, as you know other posts Autism, Adhd, and the other problems in the last post, etc.

 When it comes to bust towns, cities, classrooms, meeting rooms, or really anything that has noise and a busy atmosphere. With these problems, I have said at the start of this paragraph most people struggle to forus in a very busy noise atmosphere. Ideally which may or may not possible in your workplace etc, most of these people may well benefit in a quiet room with a one-to-one teacher, lecture, tutor, etc, I know I do really. Another problem they may face is keeping up in a busy classroom with each topic of the course etc at the same time as everyone else.

 They may not forus very well if there are high pitch sounds in the room etc. 

They may be at risk of being well behind to everyone else, which is why the support they need is important.

 In my past, I have faced courses where I haven't completed them due to having support at the start of the course then halfway through they have decided I am on my own if I want to carry on.

 However, as I said in a past post, this can depend on the person, their needs, how the support they need, and the work they do, etc.

 With courses, for example, depending on the type of course, its level, etc,  the interest the person has in it and even what they know and how much, etc. In some cases may be a little easier for them and everyone else to support their learning if they have done even similar things already. Like for example, I did Advocacy, Mentoring, and counseling which I had to have quite a bit of support with.  They are very similar in the sense of helping and supporting, encouraging, empowering people with private issues one to one but the difference is Advocacy is more illegal issues, mentoring is more career, and counseling is more personal. Whereas as during my school years I had handy any support at all and that was down to staff knowing very little about special needs etc. 

Looking at disability, mental health and other problems awareness

 Many problems such as disability, mental health, and other problems even can affect the way we learn, our everyday lives, how we cope,  even how we don't cope, how we are with others around us, etc. Not forgetting how we think, feel, behave, react, even interact with life.  

Mental illness is a mental health disorder affecting behavior and mood. Disability can affect mental health in the quality of peoples' lives and how they cope. According to google people with disabilities are affected by mental health more so than other people. Mental health is an emotional and Psychological state the mind-affecting our health well-being and how we interact with others.  Mental health and mental illness are not the same but they can lead to mental and physical illness. 

What seems to be the most common mental health problems is Depression, General Anxiety, a Panic disorder which is a form of Anxiety, (OCD), Obsessive-compulsive disorder. .. ( PTSD)  Post-traumatic stress disorder.

According to google Bipolar causes people to overreact  1 Hearing harsh words that would be painful to anyone, you may well respond with extreme anger or dark depression. Even a sad movie can make a person with bipolar disorder overreact.

Such problems as Dyslexia, Dyspraxia, ADHD, Dyscalculia, Dysgraphia and Processing Deficits make it hard for people to learn and live daily lives without the right empowerment and support. 

As I have made you aware in past posts that  Dyslexia is a reading, writing, and spelling, well some sights for what I see, it as a learning disability, and others see it as a learning difficulty. Just to say people who face dyslexia can read, write and spell but they face difficulties in doing so along the way. Most it might be getting words, letters, etc in the wrong places, etc, which even so in exams are see as mistakes and sadly can lose them marks if something is not completely correct, even though certain things are involved but if not in the right order or places, it can make a difference. Okay, people cannot be supported exams other than maybe someone reading the question to them but in studying they can. However from my experience in some colleges etc, it has been possible for me to have papers, a bit accessible, in my case normally yellow paper A4 and large print. 

Dyscalculia is a maths learning difficulty or disability, which I think I face myself whereas I have always had problems with maths. It is possibly similar to Dyslexia but a problem with numbers instead of letters and words. However' with Dyslexia it easy to see numbers in the wrong round like seeing 26 as 62 saying if someone is needing to remember a number, maybe either Dyscalculia or Dyslexia if someone faces that. However' with Dyscalculia, there is more to it than that for example if an answer of a sum is more than the fingers on your hand and you may difficult to work out maths in your head and even what to press on a calculator, etc. The Americans have described Dyscalculia as a maths Anxiety as well as a maths learning difficulty. https://www.understood.org/en/learning-thinking-differences/child-learning-disabilities/dyscalculia/what-is-dyscalculia

According to google, Dysgraphia is rather similar to Dyslexia but like Dyscalculia is pretty much linked to Dyspraxia due to motor skill and cooperation problems but doesn't necessarily mean but it may do mean that you can only face it with Dyspraxia. Mostly Dysgraphia is more of a handwriting difficulty or disability, I think I have always faced this too. 

Dysgraphia is a neurological disorder of written expression that impairs writing ability and fine motor skills. It is a learning disability that affects children and adults and interferes with practically all aspects of the writing process, including spelling, legibility, word spacing and sizing, and expression.

symptoms

  • Cramped grip, which may lead to a sore hand.
  • Difficulty spacing things out on paper or within margins (poor spatial planning)
  • Frequent erasing.
  • Inconsistency in letter and word spacing.
  • Poor spelling, including unfinished words or missing words or letters.
  • Unusual wrist, body, or paper position while writing.

https://www.understood.org/en/learning-thinking-differences/child-learning-disabilities/dysgraphia/understanding-dysgraphia


Processing Deficits

Processing disorders, such as auditory processing, visual processing, and sensory processing disorders, are conditions in which the brain has difficulty receiving and responding to information that comes through the senses.

Processing disorder affects learning reading, writing maths, memory, ogainazion, etc.  

Listening and hearing could be an example of trying to listen down an Answer machine and the press struggling to cope with the press because it's problem going too fast for them etc. 

This could be background noise. 

Struggling to follow instructions, directions, etc.http://www.ldonline.org/article/6376











 





Monday, 26 April 2021

Supporting, teaching, people with Autism, Adhd, mental health, disabilities and other problems all ages

 I understand it cannot always be the case because costs time, money, etc but if it is possible it is well worth it. People facing these problems are neither your fault or theirs, these problems neither help them or you but at the same time your safety and theirs matter. It isn't an easy job there could be 100 of them and one of you, which is most likely just a guess. All the same, they have rights to education, etc whether are 2 or 102 and I only mean it roughy. Life is too short and we only live it once. 

People who such problems as Autism and ADHD as I have said in past posts are mostly suggested to think before acting, struggle when to talk, when not to mainly in a busy place, room with a lot of people talking, etc, where they may worry they may not be heard, etc, they may struggle to keep up with each task and get it done correctly and the same time as other people, which they need support.

 This is why they are better with one to one without other people, which is not always possible but is possible with as well so whoever is supporting them not only supports them with their work but if they want to ask the teacher etc something, someone to guide them when they can speak and cannot. 

Another tip is if one-to-one support is not possible is to see their work is accessible, easy read, large print writing,  coloured paper, writing, etc as possible, also I have forgotten to say that the same but not similar support who face Dyslexia. However, if you can provide a one-to-one support tutor and seeing that their work set up is accessible the better but I understand that isn't always possible because I know myself in colleges the support they can and cannot give can vary. Whereas my days in school there was no support at all. Also, power points are rather accessible too.  https://www.gov.uk/government/publications/inclusive-communication/accessible-communication-formats

https://www.changepeople.org/getmedia/923a6399-c13f-418c-bb29-051413f7e3a3/How-to-make-info-accessible-guide-2016-Final

https://www.nypartnerships.org.uk/sites/default/files/Partnership%20files/Learning%20disabilities/Guide%20to%20easy%20read.pdf

As I said in one of the ADHD posts on depending I guess how many in your class, how many faces these problems I guess, and depending what where you work allows and doesn't allow. When I was working for Mencap I was part of a Self - Advocacy group called our Shout and we went to a lot of meetings etc and we used to have like traffic light card, which would show one when putting our hand letting know whoever was hosting the meeting we wanted to speak they would speak to us when we're finished talking to whoever else they were talking to. It sounds rather schoolish etc, which don't want in every situation but as crazy it sounds for what I have seen in most situations it works maybe a bell or whitise etc to try to get a big group, big class, etc's attenstion.

How and why Sara revealed was created and written

 Although this blog's Title is called Sara revealed it is not just about me, my disabilities, mental health, and others problems. Although I can only speak from my own experience, I hope this blog helps those who face similar if not the same in all ages and how you may be able to help others but I can only speak for myself as I say so others may say different to me, which may need to come from them. However' my blog is just an insight into what to expect from disabilities, mental health, other problems, etc. 

Although says on the blog is about me, it means for others who face similar if not the same as me.

It's not easy being understood when having a disability, even making myself heard. I am writing this blog to show my disability affects me in my day-to-day life and what help and support I need.

I hope this website helps people in the lives of people with disabilities, mental health, and or other problems such as parents, carers, families, support workers, social workers, etc, with all levels of training qualifications, even those who are trained and qualified in the field of disabilities, mental health or and other problems to help and empower those who face them as much as possible. 

Just to say I didn't set this blog up on my own, I was supported by my Mum and sister in August 2007, so many months after my Grandmother died, which as I said at the same time I started raising disability and mental health awareness for Royal Wolverhampton Mencap till May 2011. Since then I have gone from Public Advocacy Mencap to private Advocacy that was for a learning disability service One Voice, then a Visting Lecture on learning disability and mental health for student professions. 

With Autism, disabilities, mental health, and many other problems, it's very easy to look at things in negative ways when really not all is black and white.

 The reason this, for example, take Autism lack of communication, comprehension, understanding, etc is not only a challenge for me, others whole the same, similar to me but those for those in their lives who could be parents, families, carers, friends, partners, social workers professionals, etc. 

Even harder for those who don't know us and those who know we face what we face. This could be an example of other problems too but struggle to get along with people is something else because it can cause people to face Autism for example having difficulty achieving friendships, relationship, even with those who know them such as parents and family, even with carers support workers, social workers, and another professional who are trying support them, even treat their health, etc, which straighten for the person and the people around them as a whole.

 However, there are ways of not letting Autism or whatever, the disability, mental health, other problems, etc beat us.  Okay not all people who face disabilities may want to this but most may and that doesn't mean being an awareness trainer is the only career for people like us, but can be honest say awareness is needed because people similar to myself should be able to have equal lives to you but just with the right support. Speaking as a whole sorry if I sound a bit hasty etc, sorry if I sound harsh but at the same time, cost, time, money everything else but we want our rights as much as you want yours. Not only we are will to help ourselves and each other but possibly your career and that is that there need to be more chances for people with disabilities etc to raise awareness of disabilities etc to those in our lives to understand us. Not only for professional carers but our parents,  our families, our friends, partners, etc, meaning those of course who don't face disabilities, etc. 

Just to say just because I write this blog I don't expect everyone who reads it to agree with everything or anything I write etc. Sorry to bring up what I have said in the last post that people with disabilities etc seem to face as a whole, probley more so back in the day but it still happens quite a bit time after time. Not meaning to defend anyone but in many cases is the truth where society tends to look more so on our weaknesses than our strengths. Not saying it's all the while but society needs to forus more on making us feel good about ourselves, not giving us a feeling as if we shouldn't have been, we cost the world too much, and for we are hard work to the world. Sorry to say this but, to be honest too many negative words make us feel bad about ourselves and as if we should be ashamed to be alive.

 However' sorry to sound negative so how do you support us to have more positives. Well, we know a lot of us is down to us to try, which many of us do so it's not all down to you but us being told too much negative doesn't help us. Help forus more on what we can do, than what we cannot. This could be setting goals etc, building up confidence, self - esteem like I wrote about on the ADHD posts. Autism and ADHD are two the problems that most of us face that bring in negatives into us in the terms of socializing, trying to focus on work, and education. It gives u a feeling we cannot do anything right for example with ADHD a person may struggle to think before they react, they may struggle when there's a lot of people when that can and cannot talk, which may affect relationships, friendships, etc with others. 

Just to say I can only know and write about disabilities and other problems I face but their others that I don't, which I will put on some links on this post, some will, may, etc be the same, similar to what I have written but others won't be. https://changingpaces.com/6-general-types-of-disabilities/

https://www.aruma.com.au/about-us/about-disability/types-of-disabilities/

https://www.disabled-world.com/disability/types/

https://www.neads.ca/en/about/projects/inclusion/guide/pwd_01.php

https://wecapable.com/types-of-disabilities-list/





Mental ill health poems

 NO ONE KNOWS NO ONE.

 

You made me to be in this world.
The first twenty-one years of my life you weren't there.
I was no one to you, at least it felt that way anyway.
You were no one to me, it seemed as if as I wasn't anyone to you because I never saw you.
when I first met you at the age of twenty - one, I thought we put the piece of the jigsaw together but I was wrong.
Now I feel as if a piece of the jigsaw is missing in me again.
I think I have lost myself again.
Perhaps part of me was always been missing 
and always will be.
Why do I have a feeling that two human beings are missing out on my life too?
why do I have a feeling that they are asking themselves unanswered questions like I did as a child?
I want to help them because I know how it feels, it's as if you are in the dark.
It feels as I am feeling the same way again as I did as a child knowing that my half-brother and sister are going through the same as I did.
I'm their half big sister, of course, I want to be there for them and help them.
You aren't going to help them, are you?
Don't you realize what you have done and how it has affected our minds?
The past doesn't matter, I've been there all my life.
I never knew why this had to be but it doesn't matter now, it's not about me, it's about my younger half-brother and sister.
I am the past they are the present and future.
It's the present and the future, how do you think it's going to affect their lives?

why do I feel like the useless big half-sister?
no one knows no one, it's all a mystery.

 

Depression is not all sad and is not all happy.

 

We are just like everyone, we feel happy and we feel sad, the only difference is how often we feel as we do, how we behave, think and deal with it.

Life is no more positive or negative than it is for anyone.

Just because we may smile, laugh at people, make people does not mean there is no time we feel down and sad.

We have no intentions of lying and hiding anything, we just do not want to bore people with what is bothering or to feel sorry for or to seek attention but at the same time, we feel negative inside.

Some of our emotional and open in front of others but we get misunderstood for seen as seeking attention the opposite way, but many tend to think we like to be felt sorry for which is not the case either, we do not intend to be.

 

Either way, it seems one cannot win to point on the side it can be understood for bottling what is on one’s mind up or most people may think one wants to be pitied for.

 

Therefore, I am not just speaking for me but those who face similar if not the same.

Either way, it does and does not mean someone is facing depression more so often they are feeling down in their selves which could with or without a reason.

 

Behind closed doors.

 

Happiness or sadness is not a lie or hiding anything, it is a feeling inside some of us shows and others do not.

Speaking too much does not mean we want to seek attention or anyone to feel sorry for us.

Whether we show emotions or not, we just want to understand.

The person does not want to be the center of attention.

This is why most people do not show how they feel inside because they do not want to be any bothered by others and neither really do people the opposite way.

There is no winning between the two really to the point if someone does not say how they feel, where people think they bottle things up to a point they are at risk of breaking point, suicide, etc, which hugely concerning.

 If someone talks a lot about how they feel, they are misunderstood as someone who wants everyone to feel sorry for them and to be a bother to everyone, which is not the case. Mostly they feel they cannot win to a point whatever is on one’s mind get worse and without being over the top, being in risk of leaving others the opposite way if they do not try to get help.

 

 

 



Looking at understanding Mental, ill Health, other problems, and Autism in a different way.

 


I enjoy writing poetry which I have been writing since 1997 even though I wrote my first poem back in 1993. My poetry started from an emotional broken-down relationship, which has moved from now. My poems are about other topics as well as love, romantic and heartache.

A lot of my work is based round feelings not just about me others too and raising awareness of mental health in everyone.

Over years mental health, Autism and other problems have been misunderstood and judged so much on for people for being people are not.

No one lies about Mental – ill-health it is really just that different people deal with it in different ways. In fact, some people know one knows they are facing Mental ill – health. No one is seeking attention or trying to put on others for the sake of it in fact it is concerning that many try to handle it alone.

However,’ they do not want to be felt sorry for. It is rather concerning in people who do not show emotion and sadness in front of others but there is no shame, it is their choice and their way of dealing with life.

 

Most of those sorts of people have more than a sense of humor, make people laugh without even thinking but very rarely or not at all people ever see these people down in their selves but does not mean they ever are. In fact, they probley are more so behind closed doors, then those who open up emotionally in front of people.


These people as a whole naturally talented as entertainers, comics, which not all are in that sort of career. Some people become famous such as the late Tommy Cooper, Tony Handcock, etc.

 

Therefore, never think of depression as someone who always sad all the time but most people show happiness so much that it is easy for most people to think there is no sadness, which mostly happens to the most talented people and no one knows what happens behind closed doors.

 I myself tend to be open to my emotions and I remember I had when I had my mental breakdown, which lasted 12 months. Naturally, through that time period, I admit 99 percent of the time I was down a lot and I came across mostly people saying, and most did not know me all that well. Many said it sounds like in so many words you have been complete miserably all your life. At the time it made me even more down than I was, but I never thought of it being judgemental but thinking about it now it probley was. At the time it was unexplainable, and I tried my hardest to come out of it, but it took what seemed like a long time and I guess it was to what I was used but it could have been longer. In time with counsel ring and when I inexpertly went towards writing poetry it started to improve.


For those who show their emotions do not necessarily want to be felt sorry for but it is more that they are open about their emotions so it should not be misunderstood either way.

 

If people who show their emotional or really the opposite is told they are too much bother to others, they are seeking attention etc. The risk is that both sorts of people just may not ask for help, try, and deal with it themselves, which may be the risk is too hard for them to cope with where others are wondering why they did not try to get help all because without trying to make others feel guilty, the person may feel as if they are being judged without anyone meaning to make they feel that way.

 

Just to say I no professional, psychologist etc but someone who faces Anxiety and Depression myself.   

 


Sunday, 25 April 2021

Did John Keats face Depression


Since John Keat's death, experts have diagnosed the poet with manic depressive illness, an affective disorder characterized by the proximity of highs and lows. Statements such as "I shall get over my indolent fits" seem to suggest this predicament.https://www.psychologytoday.com/gb/blog/the-imprinted-brain/201408/can-you-be-both-mad-and-creative https://www.nimh.nih.gov/about/advisory-boards-and-groups/namhc/reports/genetics-and-mental-disorders-report-of-the-national-institute-of-mental-healths-genetics-workgroup.shtml

You may or may not have read on my past posts of me been inspired by John Keat's poems at the time I have my Mental breakdown twenty-five years ago. It crosses my mind to wonder whether or not John Keat faced Autism, Depression or and other problems, going by the topic he wrote his poems on, which was an emotional time he has because he had a relationship with someone to find she didn't feel the same way about him anymore or he was in love with someone who didn't feel the way about him as he did about her, which I was feeling rather similar towards one of my ex's at the time I discovered Keat's work, which inspired me into writing my own poetry.https://kidskonnect.com/people/john-keats/

Without going to it, I will be honest to say that very if not at all was Positive in Keat's life where he lost most of his family before himself, then struggled to accept the person he was in love with not being in love with him but at the same time, as times were say the 1700s to 1800, which there were no cure back them where he was facing TB. Despite of all that is inspired by his work and creating my own, I will admit very slowly it did help me to move forward in a positive way, even though it took quite a while. As as it's sounds I was feeling completely myself at that point in my life but I started to feel less alone somehow. https://www.theodysseyonline.com/poetry-is-not-dead-john-keats-is

Surely not all of his life was black and white but there seems to be no research that says there was a lot of positive, although he had been a successful doctor at some point in his life and despite his poems being emotional, he was rather talented.  https://books.google.co.uk/books?id=K6NtDwAAQBAJ&pg=PT121&lpg=PT121&dq=Did+John+keats+face+Autism?&source=bl&ots=asntTcBvxT&sig=ACfU3U3C3ZwgpeAan3jjEELl5nGxmDJR_w&hl=en&sa=X&ved=2ahUKEwixrfax75nwAhWxSxUIHY8-CHIQ6AEwEHoECAYQAw



Autism poems

 

It's easy to understand why you may think we may be rather strange.

Unaware of your thoughts, feelings, and the world around us but you may be thinking are they unaware.

Unless you know us really well, it is hard to believe in what we are and who we are.

 However, we are all human just like you. 

We don't see ourselves as special people even though we are classed as special needs, we don't see ourselves as the only people that matter or a center of attention, although it may seem like that to you.

We just struggle to think before we react and we are very sorry about that.

We don't mean be here and there's no way we would have planned our problems to affect our lives to affect you too, life made us this way, whether we were this way or not.

It makes sense why you may think all this is intended even though it's not because our problems are all hidden.

Sorry for being here, sorry for being hard at work and costing too much but then no, wanting to and not wanting to is a choice, we were born whether we like it or not, we have Autism whether we like it or not, which wasn't a choice either. 

We don't expect the whole world to live their lives around us but we have positives in us as well as negatives like everyone else but in different ways to one and different ways to you, we just need the right support to be independent and achieve what we want and what needs to be. 


Hear our voice! 

Yes, okay we show our positive not to be anyone special or even to be liked, important, etc but to show not every part of us is negative, we can achieve in something as much as you it, it just may take a little longer.

If we are going to be seen otherwise don't show our work when we have gone, show it while we are here!

Most of us when we were in school learned nothing and left with nothing to show for ourselves but somehow positives because of us, we don't need to be famous for this to happen.

However' before I say this the last thing we want and what we don't want is to be felt sorry for as if we are the only ones in life that matter and we don't want to be the only ones classed as special or the best either, we just want you to know we do have positives. 

Getting to the point most of us through school years faced bullying etc, we fear that we are hard work for society and we cost too much, which society tends to make us feel like that at times and most of us can feel as if life is not worth living but despite of that we don't want to be felt sorry for and be considered as if only our matter, we are not trying to be those we are not, we don't intend to be. 

We don't ask for a lot in life other than the right support we need when we need it.  http://www.asperger-syndrome.me.uk/people.htm

https://blog.ongig.com/diversity-and-inclusion/famous-people-with-autism/


Don't tell me!

Don't tell me I am not real because I am.

You don't need to do anything just hear my voice, which is real but you don't need to respond unless you want. 

I once thought I was crazy,  mad, thick, stupid but not anymore.

I thought I was nothing and no one but yes I am someone but no one other than I am me. 

Don't tell me any difficulty, if you like my words tell me while I am here not when I have gone! 


I have not forgotten what it was like to be a child with Autism even though at the time I didn't know I was.

Someone calling my name was like someone waking me up to the world.

I felt a little a button that one could turn on and off, amount as if I didn't expect anyone to speak to me as weird as it may sound now.

However' I never understood why I was like I was, I still don't understand why I was how I was then or how I am today if I am completely honest, it's like a feeling I cannot explain.

Sorry, I cannot speak for others the same or similar like me, I can only speak for me.

Yes, I know that sounds you completely selfish, it's hard to be any other only when you have you inside you, unless someone says yes, I feel that too. 

As a child, I used to meltdown because I couldn't express myself, these days I get mildly Anxious. 

Struggling to say things without been misunderstood, which didn't happen all the time but most of the time which no more different these days. 

This can be a struggle for those who don't know me or should I say even those who don't know me well. 

However' I know now as I am not alone whereas before, although it wasn't the case but it seemed as if I was the only one living in this world, which I didn't know then was the Autism world.  


I didn't start writing poetry till Adulthood.

As a child, I couldn't comprehend information to research.

I even struggled to use my own mind to a point most teachers even asked me if I was in this world or not. 

Like I could read what words said but never understood what they were about.

Strange to think I was amazed to discover reading and writing poetry in my late twenties not only due to a mental breakdown but to be inspired by an old poet John Keats who was facing similar. 





Saturday, 24 April 2021

Up date of when this website started

 

                         



      

Me with my back in about 1976, when I was about 6 nearly 7. 


 

I started writing this website when I was 38 August 2007, just after my late Gran died in the June of that year. 

It's not easy being understood as a person with learning difficulties. I was born very quickly which caused a lack of oxygen to the brain.  I was hyperactive and I had epilepsy until I was twelve years old. Twenty years later my fits came back at the age of thirty-one. Thirty years ago we didn't have a lot of support for disabilities. It's still not good today but better than it used to be. I believe we still have a long way to go but we always will do.

We can't expect a perfect world. My family tried to fight for the rights they thought I should have as a baby and child but it was so much more difficult nearly 52 years ago, disabilities were not as understood as much as they are today. Sometimes we thought that many people didn't want to know, now I think it's about time we learned from the past to hopefully try to bring a bright future to people with learning disabilities. Soon I am hoping to do some voluntary work at Mencap to help others overcome the difficulties that I faced.

In my following pages, I hope to explain more about the difficulties myself and my family have faced whilst I was growing up, which is in the August 2007 post.

The reason for writing this website was because I started raising awareness of learning disability, mental health, and other problems as a public Advocacy worker for Mencap. What doing for Mencap folded due funding due to funding then I moved on to the private Advocacy One Voice Advocacy service, which so many years later that Folded. Way before then I got into Involvement at the University Of Wolverhampton as a Visting Lecture to raise awareness of learning disability, mental health, and other problems to a student learning disability, nurses, social workers, support workers, other professionals in the friend, etc.

 

Problems in Autism, negative to postives even success part 2

 To face the positives, I believe mostly due to the negatives in the social side of Autism we need to look into it. Like I said in my last post no one is forced to be interested in the learning disability, mental and or and other problems field. Therefore we don't expect to be the center of attention, liked, any special treatment is the most important human beings in the world. All we ask for is to live as equal lives as possible. We will be honest say though that we need support in different areas, all different from one another in different ways. 

Despite our social skills problems giving the right training in social skills and support, even take time to get to know us, although without thinking or and be aware we may appear to you like someone or and something we are not, there is an opposite side of us those will see who will take time to get to know us. The negative is very much like what I say in the last post struggling to say what we are thinking in the right way to be understood such as wording etc, which very often doesn't come out successful and may harm others without meaning to. Given time to get to know people with Autism you could them to turn that around rather than turn against not that I am saying everyone does that. 


Try to look at more the positive sides of people who face disabilities, mental health or and other problems, there are successes as well as struggles in our lives. 

Dr. Temple Gradin was diagnosed with Autism as a young child, struggled with her speech, which improved thanks to a Speech Therapist. 

Temple Grandin is a prolific writer and speaker on the subject of Autism and animal behavior, professor of Animal Science at Colorado University, and Autism awareness trainer and lecture. 

Wolfgang Amadeus Mozart was a composer, there was no awareness of him having autism until two centuries after his death. Research had been found that he showedTourettes and Aspergers. https://en.wikipedia.org/wiki/Wolfgang_Amadeus_Mozart

https://the-art-of-autism.com/historical-figures-who-may-have-been-on-the-autism-spectrum/

Emily Dickinson was an American poet who sadly had very little or and no poems published or and on show throughout her lifetime. As well as sadly not surprisingly for her time period, unknown that she may have faced Asperous Syndrome and she also faced Epilepsy. 

Problems that affect Autism part 1

 Bearing in my mind it may or may not be the case that everyone who faces Autism will the same problems or and the same amount this could vary from person to person. The common problems are likely to be Anxiety and Depression and I will admit those two mental health problems are most likely linked to all forms of Autism as I said before, ADHD, which may not be in all forms but those who do face it, it's likely to have extra effects on their lives in the terms of stress and being misunderstood by others which Autism is alone, Gastrointestinal  (GI) problems, Epilepsy, feeding problems, sleeping problems, 

  • Obsessive-compulsive disorder (OCD).  https://www.nhs.uk/conditions/autism/other-conditions/
  • Other negatives difficulty getting along with people making friends, relationships, family, parents, and even communicating with teachers, tutors, people they work with, etc but it is not impossible just a difficulty. 
  • Unaware of peoples' feelings, thoughts, and emotions, etc but they do feel remorse if or when Aware.
They may struggle to say things, write things, or even do things in a way to be understood. For eg; take the phase to break a leg, which admit is probley not the greatest of example because it may be understood and misunderstood in different people different ways. Easy way of saying this where I cannot of example at the of my head. In their minds, they have no intentions of causing harm but when saying whatever they plan may not come out the right way, where they may get wording, etc wrong. 
The expressive break a leg is more similar but also taken to some people as if someone is telling them as it says go and break a leg, which a basic example of someone harming someone's emotions, which by some people emotionally intended but someone says someone with Autism or ADHD even both, may say it too quickly without thinking to mean reacting without thinking. 

Therefore, if someone doesn't know or and understand a person's problems and that person has taken a phase like a break a leg to the heart, there can be no going back for the person with Autism depending on the person to who they said it to. However' not saying everyone, some people are understanding, etc but others may see things in a different light if ever the person with Autism explains or someone who knows, where they may see that as the person someone trying to define what the person with Autism has said. Don't get me wrong, we are all human, we have good and bad points, even people with Autism other problems have responsibility for one's actions but pretty much most not all is due to problems these peoples' face. 

In general society, we cannot force everyone to have an interest in the learning disability, mental health, and other problems field and as I said everyone has responsibly for their own action no who we are, what we do and don't face, etc but for those who are not into the field there's so much unknown to them without saying it is their loss if you know what I mean. 


With the right support behind Autism, people can be just as successful as other people, such as scientists, actors, etc. 
Most people may face like in my case, leave school with nothing to show for themselves and then catch up in adult life, has not done me any harm but then when leaving school with nothing your spending more time catching on studies than being reading to achieve that successful job you may be skilled at and you enjoy, earnings are enough to live on, etc. That doesn't mean I haven't enjoyed my life but I have gone about with positives and negatives, which I still have had to in different ways if my life would have turned out different than what it has been. Not saying my life has been bad, worse, etc but let's see it's better for others the same but similar to me. 

However' supporting these people is showing the world isn't all black and white. Let's change negative into positive where from my experience but not in every day, I have this feeling I am hard work for others, cost too much, etc to a point I feel my disabilities, etc are my fault, as I could speak before I was born I am going to give myself problems to give others problems and need the help of others a lot, then there's a feeling life is not worth living but no but yes we may cost but with the right support and patience around us we can be as successful as people who can make successes for themselves without or very little support all different ways.  

 I cannot speak for other people and, places in the world but the UK has tried to fund to support, etc but then cuts come in, etc, which has been happening probley over ten years if not more and yet when I was a baby, child, and teenager there were no support services at all, etc. My Mum just have to depend on family support and going out to work to support me the same as parents would with children without problems, which was hard but she got by considering she was a one-parent family, she did amazing and she still is. https://www.cbc.ca/parents/learning/view/i-want-to-share-10-positive-traits-that-people-with-autism-have



Friday, 23 April 2021

Problems that affect Autism

 ADHD affects peoples' construction, acting without thinking, and finding it hard to sit still. Needing extra support in school. college, university, work, etc. However, it may not be the case in everything and even everybody, depending on what they are doing, how much they know, how much don't know, etc, the person themself, the problems they face, etc to how much and how little support they may need, it may vary, which I guess the easy way to find out is by assessing the person's abilities and needs. Some things the person may tell you themselves but others they may not know until they do the task of whatever that may be. For eg; school work, coursework, work tasks, etc. 

Dyspraxia motor skills and cooperation problems, lack of strength and grip, just as opening jars, bottles, chopping up veg, letting heavy hot joints out of ovens, straining veg for example so the list goes on. They may be clumsily dropping things, falling over, they may struggle to get organized, etc. https://www.longdom.org/open-access/similarities-in-dyspraxia-and-autism-2165-7890-1000231.pdf

https://www.news-medical.net/health/Are-Apraxia-and-Autism-Related.aspx

Like Dyspraxia Dyslexia is a learning difficulty but one is slightly different from the other. Dyspraxia is a physical and mental learning difficulty whereas Dyslexia is a mental learning difficulty. They both the same with reading, writing, and spelling.  In most cases, it's likely to be that the person might know there are certain letters in a word but they may put the letters in the wrong place of the word or a word or a few in the wrong places of sentences for example.

  Both Dyspraxia and Dyslexia can affect memory, lack of comprehension and probley lack communication as well.  For example; when I was a small child I remember getting told off by one teacher because in handwriting I forgot to miss a line between the date and the title, which back then professionals weren't really away of these problems. It could be a person who could ready well may struggle reading certain words etc but put the book etc down and ask them what is about they don't know.

 My teachers never understood that in me, neither did I myself. I have improved a fair through my life but have problems with it in some areas. Most people may face problems with the sounding of words, orders how things go, etc, even pretty similar with numbers. Like mixing 62 with 26, dog for bog, bs, and ds, etc. 

There are positives in Dyspraxia and Dyslexia such as arts, drawing, painting, craft creative writing, etc. Although Dyspraxia may have its limits such as crafts as sewing, knitting, etc, which may be a challenge to most people in the terms of strength, grip, etc.  

Most people with Autism face sleeping problems, which is (Insomnia), this can be mostly due to Anxiety with the mind thinking about everyday issues, etc that may be bothering people, which may be a change of route and all sorts of things. When I was a child my Mum sent me to Boarding school. When I think about it now, I understand it was for a good reason because she was a one-parent family, back then there was handy no support and due to my problems, I was a handful. However' I faced bullying etc and I struggled to say why I wasn't happy there in a way others didn't understand. Without saying my life was all negative which it wasn't I faced bullying etc every school I went to. With Boarding school though having to sleep there was a challenge when I started when I was seven first time being without my Mum, family, etc. Even before then I faced sleeping problems but being with different people etc took a while to get used to it even though I did but then not sure I did but I was there till I was twelve.  



Wednesday, 21 April 2021

Autism and Epliespy part 1

 All seizures are caused by the electrical activity going through the brain but as I said in my last post most sites have said Epliespy is rather common in those who face Autism not to say completely everyone with Autism has Epliespy either. In those who face Asperger Syndrome, according to google it's likely to be caused by a lack of sleep or Fever. They are likely to star into space. I may have misunderstood this where it can vary to the people being unconscious and con conscious, a body convulsion, unusual movements. http://www.autism-help.org/comorbid-seizures-autism.htm#:~:text=Seizures%20are%20caused%20by%20abnormal,sleep%20or%20a%20high%20fever.

I wonder whether or not the type of changes through a person's life I have just been reading up about Epilepsy and Autism Spectrum, it says it can have a huge effect on a person's school during children, which I faced myself but for me once I came off my tables when I seizures stopped I slowly started to improve and I hope others can. https://www.youngepilepsy.org.uk/news-and-events/news/the-link-between-epilepsy-and-autistic-spectrum-disorder.html?jjj=1619086791730

https://www.youngepilepsy.org.uk/for-parents-and-carers/st-piers-school-and-college/

It may not be the case in every person's life but some medications may or may not affect peoples' lives if you people anyone who are medications for anything, not just Epilepsy, that affects their education, affects them getting about independent and safety, etc, the medication they on may not need looking into, but then it may not be the case in most peoples cases, it could be other things that health professions may need to look into and to look into how these matters can be supported safety.https://autismtruths.org/pdf/7.%20DJF-EpilepsyBrochure.pdf

I have spent roughly an hour searching on google for more information on Autism, Anxiety, Epilepsy, stress, and Adhd, not a problem but there doesn't seem to be a lot to my understanding. However this may not be that helpful too but I will try to do my best by going from the problems I face, which some people you may come across may not face the same but similar then others might. I guess really I have already said it on most posts so I am sorry if that is the case. However' it is an awareness that needs to be raised and going by most sites I have seen which good, truthful and raise some very good points but it might be due to my disabilities, etc, but I guess there needs to be a more clear understanding. Fair enough very understandable you may wonder what I am on about, which I will get to the point of saying. 

In all forms of Autism and (ADHD) faces Anxiety, Depression, and stress, which is not just round for example; I need to pay this bill, not sure I can afford it, etc etc. In most cases not necessarily all even if they can affront or if they have to find the money etc. It could be a challenge for them having to find the money on this etc, maybe set up direct debt, etc. They may even worry about things they may need to worry about etc, they may find it hard to realize till they get support and all that. This situation is just an example, it could be any situation but whatever it is till it's sorted, it plays on their minds, which it may something that's small to you but huge to them, which stress increases and if they face Epliespy and or things like strokes, panic attacks,  heart attacks, etc, it could be a health risk. https://adaa.org/understanding-anxiety/related-illnesses/other-related-conditions/adult-adhd



 




Autism and Epliespy

 I cannot find a lot of information on Epliespy other than a couple of sites. It may not tell you everything needs to know but I will write from my own experiences and put on the sites I have found. 

However' people with Autism face Anxiety and Depression, which means depending on the person and their problems etc, by a guess if stress and Anxiety, etc get too it can increase to seizures but that may not be the case for everyone who faces Autism. As I have said in past posts, I have been through periods of years with and without seizures, which is rather odd, the only thing I can think of that it may be because I was born lack of oxygen but I could be wrong.  Before I go, I will just put this link on about Epilepsy and Autism. https://www.autism.org.uk/advice-and-guidance/professional-practice/epilepsy-autism

I can only speak for myself and not others who face similar or the same. When I face seizures it's normally what was called Petty mal, which I think they call what you call Absence seizures these days, and face another type too, which I don't know what it is.https://www.autistica.org.uk/what-is-autism/signs-and-symptoms/epilepsy-and-autism

Signs

Pins and needles

Stiffness

Shaking

Headache

Dizzy spells etc

Not unconscious  https://tacanow.org/family-resources/seizures/ 


Most sites I have read have said that Epliespy and Autism are rather common together than in other people with and without other problems. However, it doesn't necessarily mean you will face everyone faces Autism facing Epliespy or the other way round, it may vary.  According to the Autistica site, which I have put at the end of the third paragraph of this site on this blog. Epilepsy is common in those who face, which are genetic disorders connected to Autism, which are these.

  • Rett syndrome  https://www.nhs.uk/conditions/rett-syndrome/
  • Fragile X syndrome https://www.spectrumnews.org/wiki/fragile-x-syndrome/
  • Tuberous sclerosis https://www.tsalliance.org/about-tsc/signs-and-symptoms-of-tsc/brain-and-neurological-function/tsc-and-autism-spectrum-disorders/

Tuesday, 20 April 2021

Making sense of Autism, Anixety, Depression, Stress, and Epliespsy Part 2

Some things that might that Autism and ( ADHD) is that people who face it struggle to understand the world, people their feelings, etc, which can cause them to do and say things without thinking, knowing, understanding, etc how it affects people and things. However in most cases it maybe not all of us who face it, it may improve through lives but in some areas of life, it may still be there. What I am saying there may not be correct for everyone, which probley can vary from person to person.

 However, with the right support for these people, training, teaching, etc of others with the patience of those around them, it is possible to help these people be aware of their own actions as long as it's understood with many it could take however or whenever long.

In past, not just when I was a child, etc but even before then there was no understanding, which therefore most of these people and possibly even those with many problems too were misunderstood by people they didn't intend to be because of how they may have come across to others. However, I will be honest to say that I am unsure that it was all black and white as there were famous people who faced the same but similar problems but I don't think were known at the time, which tells us that despite of it, it shouldn't affect these people making successes of themselves, they just need the right support to do so. https://blog.ongig.com/diversity-and-inclusion/famous-people-with-autism/

In Autism and (ADHD) the signs are similar in the sense of behavior. Just to say if you know people or someone who face either one or both of these problems or who may. The list of signs is huge and it doesn't mean they have to face every single one to face them but maybe most. Also, it may even depend on how often you see these behaviors, this can vary. If you are a family or and parent etc, there is no shame in making your GP, etc aware you have concerns, then they should tell you either. If your a friend etc raising the concern to the person, even family, parent, etc may not be aware or not realize, etc, it may be worth raising the concern to them, then it's down to them. 

ADHD in Autism 

Struggling to wait their turn. 

Acting without thinking

Finding it hard to sit still, fidging when sitting down, even trying to climb stand on a chair, etc. 

Talking a lot 

Interrupting with people talking a lot, talking over people a lot, etc.

Short attention span

Concentration problems and struggle where they are etc if they have to stop and do something else.

They may lose and forget things a lot. 

They may struggle to get organized a lot. 

They may struggle with getting studies or and workloads correctly on time. Children may struggle with classroom homework in the same way.

When trying to read a book, they may struggle to read the whole book unless it's in easy read and it has interest to them, but then can vary where they may stop reading for a long time then go back to it, etc or not at all. 

They may struggle to do too many things at once, multitask, ing, etc. 

There is more than what I have listed, normally most of this behavior is seen as rude, bad manners, etc but if it is happening a lot and the person is struggling to understand why it's not good then concerns need to be raised. Even people such as myself face these problems, understand that these things cannot be understood by everyone but it needs to be raised as much as possible. However' in most of us the older we get, it doesn't go away but with the right support, training, etc these things do improve.  Like I said in the last post we all have good and bad in us and we need to balance what is down to the problems and people themselves.

As you already know on top of that, which is part of Autism, people facing problems socially, struggle to interact with others, respond to their name,  difficulty with eye contact, struggling what to say to others, and not being aware that certain wordings could be misunderstood by others, not be how the person meant whatever it may be to sound. example; Phase like break a leg. Either the person or whoever they are talking to, depending on whose the talker and whose the listen may see it as it is rather than a joke. Lack of communication and understanding.  https://www.autism.org.uk/

Like I said at the start of this post, however old or young someone is some people may take a long time to be aware and understand how they behave, etc appears to others. This could vary to the person and the problems they face etc. When they become aware they don't feel good about their problems make them behave but as I said we are all humans as well with good and bad points. 


Anxiety in Autism. 

Anxiety in Autism is normally social and generally Anxiety for example is common in people Autism,   it may appear because they struggle to socialize with others. It was not the case in everyone but others may take advantage, bully them, etc because they may not understand the person's problems, etc, therefore it could be possibly social Anxiety from even social abuse from others. When I was a lot younger I was easy to lead for eg; if someone told me to jump in a river I probley would, which seems crazy now. I am still vuanble but not that vunable now, this was in my school years and most children can be cruel to other children, choose the most vunable ones to bully, etc. 

The signs could be.

Struggling with school, college, university, work, etc even fear of being laid off, etc because of their problems. 

Fear of social situations, even if they make friends, relationships, and friendships fears of not keeping them, pretty most of the time that happens. 

Fear of open spaces and crowds (agoraphobia)

  • other specific fears (phobias)

 

Signs of Anxiety, there are many signs not listed here but here it some and it doesn't make someone not facing Anxiety if not facing all of them but pretty much most. 

Heart racing

Short of breathe

Feeling distressed

Feeling shaking

Sweating

Stomach ache 


Here is more about Autism and Anxiety. https://www.autistica.org.uk/what-is-autism/signs-and-symptoms/anxiety-and-autism